I have some exciting news to share with you guys today. On Sunday night, I had the opportunity to hang with the crew of Strange Flavors and tell a little bit of my story about what it’s like to live with depersonalization/derealization; we also talked a little bit about living with bipolar disorder.
This has actually been in the works for a few weeks. As some of you know, I took a ton of classes during intersession, which is basically a one-month set of classes going at breakneck speed. It was madness, but I knocked out nine credits in a month, so I consider it a victory overall.
One of the courses I needed to take for my program was career/life development (something, something…the actual course title was pretty long and I’ve forgotten the rest of it). During that week, I connected with the fabulous Neha, whose brother and a few friends run the Strange Flavors podcast. She approached me on the last day of class, said I seemed interesting (which I found ridiculously flattering), and told me to shoot her a text about possibly making an appearance.
So, fast forward to Sunday. I showed up to do the podcast and was immediately welcomed by Amber and Faras, two of the podcast wizards. They made me feel incredibly comfortable and welcomed, and it was an amazing experience! We sat for about an hour while we did the standard podcast-interview thing; I found their questions incredibly helpful, because my thought train tends to majorly derail when I actually talk about this stuff.
I brought my fella with me for moral support. (He was also curious about how a podcast is made, and we planned to hit up Alewife on the way home. Spoiler alert: They were closed. At 7:30 PM. On a Sunday. Boo!)
I’d never been on an actual podcast before. I’d done the Risk! live show in 2015 and have, of course, made some really crappy-quality videos for my Youtube channel, but this was a totally different animal. They also recorded video of the session, which made me freak out a little bit because I cannot stress enough how unphotogenic I am. However, I’m looking at in a positive light and am excited to see the video once they throw it up on their channel.
Here’s the podcast–have a listen and let me know what you think!
So what’s next? I have a new video a-comin’ that I’m planning to upload probably next week, and I’m thinking of submitting another pitch to Risk!. Gotta keep that hype train rollin’, right?
Anyway, check out the rest of the Strange Flavors podcasts–they’re funny and genuine and I think you’ll really like them.
Another spoiler: The big thing on Strange Flavors is that at the end of each episode, they ask their guest to say what flavor they’d be and why. I chose violet-flavored hard candy, but you’ll have to listen to the episode to find out my reasoning behind it. Ha!
Until next time, readers, stay safe and sane. I’ll catch you guys in the very near future.
Jeanette at My Life with PTSD & Bipolar: Mental Health Matters kindly nominated me for
Write a brief story about how your blog began. I’ve been running The Dissociated Press for five years now (holy cats, time flies!) and have been documenting my journey to mental health–or at least, relative stability and improved daily functioning. When I started this blog in 2013, my life was a total mess. I was in an unhappy marriage and missing a lot of work because I was freshly diagnosed with bipolar 1 and adjusting to my new medications. I ended up losing that job, which was a major low point.
There have been a lot of low points throughout my blog-writing history, but things have dramatically improved in the last couple of years. I escaped from that unhappy, unsupportive marriage, enrolled in graduate school for clinical mental health counseling at a great school, and got engaged to a lovely, wonderful man.
I still hit depressive episodes from time to time, but unlike my pre-medication, bad relationship days, I take comfort in the knowledge that my life is so much better than I ever could have imagined. I have a wonderfully supportive partner, and his family is incredibly encouraging of me sharing my journey. My classmates have expressed appreciation for my candor, and I’ve been able to help a lot of people through my disclosures.
Advice for new bloggers is something I haven’t really thought about, but my main piece of advice is to write for yourself first and foremost. TDP has evolved over time–at first, it was a place for me to get my thoughts and experiences out into the ether in hopes of finding others who were also struggling.
Also, I like to focus on and directly address my readers as a group in my posts and always try to end a post with a positive thought or insight. It prevents the blog from feeling dreary and helps promote the overall message: recovery is possible, and recovery never looks the same for everyone. Your journey matters. Your message matters. Your experiences matter.
As I’ve gotten healthier and stopped focusing so much on my illnesses (which are still a main focal point of the blog, albeit in a different way), I realized that my relatively small following was a great audience for information about the stigma surrounding mental illness.
I realized that everyone, but especially others living with my specific conditions (PTSD with depersonalization/derealization and rapid-cycling type 1 bipolar disorder) could benefit from learning about the latest news and treatment options. I’m building up quite the library of scholarly articles and studies, and if there’s enough interest, I plan to post a few quick-and-dirty rundowns of them.
Again, I can’t thank Jeanette for this nomination–it came out of nowhere and I feel very honored about the whole thing and appreciate being recognized for my work. Validation and recognition for what I’m doing always feels nice! Also, the badge image is really cute.
My Picks for Nomination:
Bloomin’ Uterus (a blog about endometriosis, which I also have)
I made a video on mood journaling the other night and finally got around to uploading it. Check it out!
For Thanksgiving, we flew back to my hometown in the Midwest to visit my remaining family–my mother, the aunt who was my legal guardian when I was a child, and another aunt who lives about an hour away from said hometown but visits regularly.
As I told my therapist this afternoon, “I don’t want to say it sucked, but…it sucked.”
I don’t want to get into any of the messy details, but I realized a few things during our brief Thanksgiving trip.
The first is that my grandmother is dead, like, for real-real. My “mom” is dead. Full stop. It’s not that I was pretending otherwise, but being in her house without seeing her there drove the point home in an unexpectedly painful way, and I had to hold it together while I was there because I knew if I lost it, so would everyone else, and then it’d be this whole terrible thing that I was just not equipped to handle.
The second is that it’s not normal to spend the week up to your flight being anxious and trying to brainstorm ways to defuse any potential arguments. It’s not normal to be five minutes from landing in your hometown and freaking out because you have no idea how many fights there will be this time or how bad they’ll get.
The third is that it’s simply not healthy for me to go “home” again. My therapist agreed with this assessment–there really is nothing there for me anymore. I’m 28 and am building my own life, my own family. If anyone wants to visit me, they know where I am. There are several large airports nearby. I never turn my phone off, though I have become more selective about when I answer calls–if I’m emotionally exhausted and have nothing left to give that day, I let the call go to voicemail.
It’s not like I’m unreachable. I just don’t want to make the effort anymore. I’m tired of throwing myself out into the wilds of my family-of-origin and hoping I come back in one piece. I’m tired of having to tell them, “Hey, I flew all the way here, can we all just get along?” I’m tired of having to put a dog into the fight. I’m tired of there even being a fight.
I went back “home,” and all I got was the flu and three days of crippling anxiety and depression.
Readers, it’s okay to set boundaries. If, like me, you’ve finally hit your breaking point, please try not to feel guilty about it. You need to take care of you first. You can’t pour from an empty cup, and life is too short to spend it with people who make you miserable.
Hey readers! I haven’t posted any sort of “There’s a real person in here!” content in a really long time, so here’s a quick clip of me walking you through an even quicker breathing exercise. Click below for the transcript and let me know what you think!
(Side note: I love transcribing stuff because it makes me uncomfortably aware of my verbal tics. Sorry ’bout that.)
Grief is a funny thing.
My mother and aunt have been gradually cleaning out Grandma’s house, which means that once a week or so, I’ve been receiving boxes of my childhood books and toys. They’ve also chosen to throw in our Christmas gifts for this year, and I’ve been instructed to open them whenever I feel like it.
I was going through one of the boxes a few weeks ago and found a pair of small presents. Intrigued, I started to open one, and then I saw the label. “To Jess; Love, Grandma.”
I basically lost it. I haven’t really cried much since she passed, but it hit me that I’ll never get another gift or card addressed from her. It makes me feel silly because she hasn’t personally addressed anything in years–she had Parkinson’s, so someone else always did the writing for her. But it made me realize that she’s actually gone; that she won’t be there when we go home for Thanksgiving, or around when I get married and graduate. Again, I know she wouldn’t be able to come to Baltimore for either of those things, but the knowledge that she won’t be around to hear about these events, that I won’t be able to call and tell her about them, really gets to me.
I’m beginning to come to terms with the fact that opening those presents won’t make her any less dead. They won’t take away the fact that my other maternal figure is gone.
I think I’ll open them today. My mother told me that they’re a pair of salt-and-pepper shakers Grandma bought when she was on her honeymoon (all the way back in 1947!) and it might be comforting to see them on display in our apartment.
Grief is a funny thing.
Is it possible to simultaneously be the most troubled and the most well-adjusted person you know? The deeper I go into my counseling program, the more this question pops into my mind. On the one hand, my demons are legion. On the other, I keep them very well-controlled and they all have little color-coordinated leashes.
Am I well-adjusted because I have to be? Does being well-adjusted look the same, or mean the same thing, for people who have backbreaking loads of trauma and those who don’t?
I used to worry a lot about whether my personal mental health history meant that I can’t be a therapist. I still worry about that, though thankfully not as much. Tonight in class, we were discussing self-disclosure and one of my classmates brought up that exact question–how are our clients supposed to trust us if they know we have our own set of problems?
I guess it’s one of those situations where what you have doesn’t matter as much as how you handle it. I get up every day and even though I do a fair amount of yelling at the intrusive negative thoughts, I still manage to accomplish everything on my to-do list. (Well…most things, anyway. I’m human.)
This has been on my mind for most of the day today, probably because I had intake with my new therapist yesterday and was thinking about the wall between my thoughts and feelings. I depend so heavily on that wall to keep it together, and I’m a bit worried–or, okay, a lot worried–that once I start really delving into the trauma and trying to merge my thoughts and feelings that there will be this monumental change and I’ll basically fall apart. I can’t remember the last time I was able to feel an emotion on an actual deep, meaningful, emotional level for more than a flash before cognition takes over and the brain reasserts control over the “heart.”
I know that’s unrealistic and that no one can do a total 180 in terms of functioning, but the unknowns are scary. As horrible as it is to know certain emotional things but not be able to feel them…better the devil you know than the devil you don’t, right?
I haven’t had self-doubt like this in quite a while, but getting the thoughts down on this little blog has helped a bit. It’s funny how writing about your troubles takes away some of their power, isn’t it? I’m also going to hit the self-care pretty hard tonight because tomorrow I have a phone interview with another prospective internship site–yay! That search is pretty terrifying, but I have a good feeling about the last couple of sites I’ve contacted, so fingers crossed.
Until next time, readers, remember to take good care of yourselves. I will, too.
I just received word that my grandmother, who raised me, passed away this morning at the age of 93. I had been bracing myself for it for a while so it’s not a shock, but it’s still hard to deal with.
What I’m going to do right now is finish some homework for my online class, email my professors and prospective therapist (I was supposed to have my intake on Tuesday), and try to chill out until my fiance gets home around six-ish.
I’ll keep you guys posted.
Good morning, readers!
School started last week and there’s been a lot going on in my life on the personal side–my 94-year-old grandma, who essentially raised me as her own for most of my childhood, has been ill and I’ve once again been dealing with anticipatory grief.
Anyway, on a happier note, here’s some news for you about PTSD. (And it’s literally happy–it’s about Ecstasy!)
In a nutshell: those lovable FDA officials just granted MDMA “breakthrough therapy” status as a potential treatment for PTSD. Clinical trials will (hopefully) be easier to come by now, and I am very much looking forward to seeing how this develops.
Important distinction: MDMA isn’t FDA-approved, but this is a huge step in a very promising direction.
Right now, PTSD treatment options are super-limited. My brand is pretty wicked, but my only option for dealing with the symptoms is lorazepam/Ativan. I count myself lucky that I only have depersonalization/derealization, anxiety around crowds, and the occasional nightmare. It could be a lot worse. I’ve written extensively in the past about my experiences with dissociation (hence the name of the blog), but like most things, you get used to it.
But it’s not something anyone should have to “get used to.” None of us should have to accept the symptoms as our “new normal,” and for many, the symptoms are debilitating. That pretty much goes without saying (though of course, I decided to say it anyway).
I recently completed a research proposal for one of my summer classes, and while it was a painful process for someone who’s not a big research fan, it was definitely eye-opening. There has been shockingly little research done on depersonalization/derealization; most of what I encountered deals with “dissociation” in broader terms and the individual disorders are either not specified or are all lumped together in a mass that ultimately provides no insight about the actual conditions.
Anyway, that’s a post for another day. What I’m getting at is that PTSD is an incredibly complicated beast. While some symptoms are consistent, it never looks the same in two different people. Anecdotally, the symptoms can look different at various stages in a person’s life.
Seven years ago, I was having flashbacks (not the dramatic Hollywood kind where you’re literally in the memory–the kind where you sort of space out and the memory plays out in your mind’s eye while you’re pretty much unresponsive to the real world). Then, in 2012, the flashbacks stopped and the depersonalization/derealization got its hooks into me and has been hanging on for dear life ever since.
Like I said, you get used to it. The pain fades. You adjust to never really feeling “real,” to being in this perpetual dreamlike state. When it spikes, I try to welcome it as a new adventure and pay attention to what feels different without getting anxious or judging it as “bad.”
Still, it would be nice if there was something out there that could help just a little. I’ll be keeping my eye on the MDMA breakthrough and keep you posted on further developments.
In the meantime, readers, what helps with your symptoms? Grounding exercises are one of my favorite things to do if I start to feel anxious. It’s less tedious than counting things.