News Day Tuesday: BiAffect App Links Keystrokes with Bipolar Episodes

a cure for what ails you, bipolar disorder, News Day Tuesday, rapid-cycle bipolar disorder, three hopeful thoughts

Greetings, readers!

It was a bit of a challenge to find an article for this week, but I finally stumbled upon something that could make a huge difference in how we track our moods. There’s a new app called BiAffect that uses your keystrokes, frequency of texting, and social media app patterns to track manic and depressive episodes.

To find out whether a user might be experiencing a manic or depressive episode, the app tracks typing speed, how hard keys are pressed and the frequency of the use of backspace and spellcheck.

chicagotribune.com

I know there are a lot of people who dislike the idea of being tracked in any sense, which is totally fine. However, I feel a bit more comfortable with it knowing that it comes directly from a research group. It’s only available for iPhone, which is kind of a bummer because I’m a die-hard Android user.

I wish something like this had been around in 2013, when I was deep in the throes of exhausting rapid-cycling episodes. I was newly diagnosed, but the challenge of finding the right combination and doses of medication, the loss of my job (probably due to my cycling), and the overall disintegration of my marriage had more or less temporarily erased any benefits or relief I found from my diagnosis.

One of my long-time friends mentioned that he noticed I was posting a lot more on Facebook when I was manic than when I was depressed. Like, a lot. Even now that I’m stable and successfully medicated, I still pay close attention to what and how often I post. When I’m more energetic and feel like interacting with others, I find myself wondering if it’s because I’m manic, hypomanic, or just…not depressed.

When you’re living with bipolar disorder, it’s a constant question of Column A, Column B, Column C, or a bit of each. You learn to analyze your moods and energy levels, and this tracking can quickly become obsessional.

I see this app as a double-edged sword. On the one hand, it would save those of us who pay attention to our moods a ton of work. On the other, those of us who are prone to preoccupation and overall obsessional thinking could end up checking in a lot more often than usual.

If BiAffect is released for Android, I’m for sure going to jump on it, at least for a trial run. It seems like it could be a useful tool for mental health care providers and patients alike–rather than having to drag in pages and pages of mood diaries, we could pop open an app and have the data right there at our fingertips (literally). And, at least in theory, it seems like any sort of self-report bias would be removed, or at least mitigated. I know I’ve been guilty of fibbing a bit in my mood diaries due to the shame that comes from realizing just how sick I am.

What do you think, readers? Would you give something like this a spin, or do you find it intrusive? Let me know! I’ll be keeping an eye on this one.

Until next time, stay safe and remember to be excellent to yourself.

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The Big Bad Blues, they’re a-comin’

anxiety, Authoress, bipolar disorder, major depression, personal experiences

The Blues are back in town, and unfortunately, I don’t mean the Snooks Eaglin, ramblin’-soul-man-with-a-guitar type. Thanks, winter!

Don’t get me wrong–I am loving the Maryland weather. The winter has been mild, but when it’s 70 degrees one day and 30 the next, oh man, that’s like hitting a brick wall doing 90 miles an hour.

I like to imagine that there’s some kind of a party going on in my brain. I  picture my synapses and neurons and all those delicious chemicals that enter my body in pill form each morning to keep me sane, dancing around in a conga line with lampshades on their heads before passing out with permanent marker on their faces.

The party bit isn’t what troubles me. That feels okay and decidedly un-manic these days. It’s the afterward, that insidious unraveling of the good-times and how they fray bit by bit until all that’s left is the worst kind of loneliness–the loneliness that is you and your brain and nothing else.

There is a vast emptiness that comes with depression. When I decide to stay up after Paul has gone to bed (because our sleep schedules are pretty different–he has day classes, mine are at night), I’m often struck by an aching loneliness. Even though I know he’s fifteen feet away in the bedroom on the other side of the wall from me, a dark antsiness sets in. It’s not because we’re not together, because I can be my own company and take care of myself. It’s how frightening it can be in the quiet of the apartment when the day is done but I’m not tired enough for bed and while my brain isn’t especially active, the emotions hiding just beneath the surface start to make me feel bad for no reason.

Sometimes I get shivers, but on the inside. It’s like having someone reach out from inside your organs and tickle your ribs, disconcerting and uncomfortable. It makes you want to cry for no reason, but then when you try, you find that you can’t. There is no catharsis. There is only waiting and distracting yourself until it calms down or you go completely mad (and sometimes both, by turns).

These are the Big Bad Blues, and it seems they’re back in town.

Sometimes they show up only at night, and only for a day or two. It’s unavoidable; no matter how well-medicated and well-adjusted you are, things are going to slip in through the cracks from time to time. It’s the nature of the beast. My body and my mind are like a drafty house in that way. I take care to shut the doors tight, to put plastic on the windows and check the vulnerable spaces with candle flames to see where there’s a leak, but in the night, little wisps of cold sometimes slip in and wrap around me. If I don’t catch it early and fight back with whatever’s within grabbing distance, I begin to feel as though I’ll never be warm again.

Then there are the ones that come in the late afternoon, just before sunset, when the shadows stretch long and the light begins to turn golden in the before-dark time. The Golden Hour, I’ve always called it, but it doesn’t mean anything good. I have about a thousand theories as to why this time of day gets me down harder than anything else, but I’m not sure what I’ll do with that information once I figure it out or how the insight will make me feel better. For now, all I can do is turn my head away and get through it until it passes and the calming near-dark comes.

When I start to feel like this late at night, I slip quietly into bed and read for a while. The proximity to someone I love who loves me back is comforting, and whatever book I’m currently reading relaxes and distracts me. When I get to feeling low, distraction seems to be the only thing that can snap me out of it. I spend a lot of my time hanging out by myself in the apartment with the cats and my textbooks, but having something to do keeps me sane. It’s the nothingness that’ll get you, and it will get you every single time.

I’m pleased to report that I woke up today (albeit much later than I wanted) feeling just fine. At present, I’m working on reading ahead a week or two for my classes, though I’ll inevitably forget to cross it off in my planner and then go back to it on the appropriate week and wonder if a mysterious ghost-highlighter has gotten hold of my books. It’s actually a good source of humor and plus, it’s always a relief to realize that you have less homework than you thought.

And I know I’ve been promising-promising-promising that series, which at this rate will be out by sometime next year. (I kid! I need to make some sort of research schedule for each day, though, because I am spectacularly unmotivated and there always seems to be some other thing that grabs my attention.)

Until next time, readers, stay safe and lovely.

 

News Day Tuesday: Mental Illness and Prison

bipolar disorder

Good afternoon, readers! First of all, I want to share some big news of my own–on Thanksgiving, on the rooftop of a family friend’s townhouse, my fella proposed to me! His parents and sister were there, which made it so special. I could not have asked for a more perfect guy or a more beautiful memory.

Now, on to the meat of today’s post–the treatment of the mentally ill in the United States penal system. I found a wonderful piece of investigative journalism (courtesy of the Boston Globe) that follows one inmate, Nick Lynch, through his release from prison and his adjustment to life on the outside.

Lynch, twenty-six years old and diagnosed with bipolar disorder, had been incarcerated for eight years at the time of his release. His father had made plans for the two of them–going back to college was a huge goal, undergraduate for Nick and graduate school for his father. However, as Russell and Cramer note, “But Nick was sicker now than when he’d gone to prison.”

In prison, Lynch received little in the way of mental health care, and his illness was exacerbated by being segregated. Near the end of his sentence, he attempted suicide, which was the final push needed to secure better mental health care for him. This is deplorable and only serves as one more tragic event in the ever-mounting heap of stories of how the very systems designed to protect us–people with mental illness–fail, often with tragic consequences.

While prison officials defended the course of action taken at the facility, Lynch’s father tells a different story, stating that he was the one who had to push to secure appropriate treatment for his son.

The article is lengthy, but it follows Nick’s saga of treatment, the overall difficulties navigating the mental healthcare system, and his return to prison. I strongly encourage you to read the entire piece here–it is a wonderful example of the type of exposé we need to start making a difference in the lives of those who need it most.

This brings me to my next point–I’ve been meaning to do a series of sorts about deinstitutionalization in the United States, which I’m hoping to get started in the coming weeks. In the meantime, let me know if there are any specific topics you’d like me to go more in-depth on.

And, as always, stay safe and lovely, readers. I’ll see you next time.


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News Day Tuesday: Bipolar Awareness Day!

a cure for what ails you, explanations, major depression, medication, mood diary, News Day Tuesday, ptsd, rapid-cycle bipolar disorder, stigma, therapy

Happy Tuesday, readers! Today (October 4th) is Bipolar Awareness Day, so I wanted to share an article with you that outlines the basic symptoms (for the uninitiated, as I know there are some new readers here) as well as what’s on the horizon in terms of treatment.

First of all, let’s hear about what bipolar disorder actually is. I’m referencing bt.com for the purposes of this tidbit, as the article I found gives a really great Reader’s Digest condensed version of the illness.

National charity Bipolar UK characterise the condition as “a severe mental health illness characterised by significant mood swings, including manic highs and depressive lows”, and note that, “the majority of individuals with bipolar experience alternating episodes of mania and depression”.

According to this article, it takes 10.5 years on average (in the UK) for people with bipolar disorder to be properly diagnosed. The National Depressive and Manic Depressive Association (NDMD) paints a similarly grim picture: it can take ten years or more for a diagnosis to be reached, and 69% of cases are misdiagnosed.

What are the symptoms?

There are two sides to bipolar: mania and depression.

During a bout of depression, it is possible to feel: grumpy, without hope, guilty, self-doubting, suicidal, pessimistic, worthless, lacking curiosity and concentration.

And with mania: elation, full of energy, ideas and plans, easily distracted, feeling invincible, risky behaviour including spending huge amounts of money.

Both can feature: lack of appetite, insomnia and delusions.

-bt.com

My experience began very early. I remember fits of agitation and depression as early as eight years old, which at the time was chalked up to the incredibly rough hand I was dealt–a broken home, a mother who struggled with bipolar disorder herself as well as alcoholism, extreme bullying, and persistent nightmares (which were later diagnosed as a feature of PTSD). NAMI states that rapid-cycling bipolar disorder, the most severe form of the illness, seems to be more common in individuals who begin exhibiting symptoms early in life.

From NAMI.org:

Early Warning Signs of Bipolar Disorder In Children and Teens

Children may experience severe temper tantrums when told “no.” Tantrums can last for hours while the child continues to become more violent. They may also show odd displays of happy or silly moods and behaviors. A new diagnosis, Disruptive Mood Dysregulation Disorder (DMDD), was added to the DSM-5 in 2014.

– See more at: http://www.nami.org/Learn-More/Mental-Health-Conditions/Bipolar-Disorder/Overview#sthash.l0XKtkSy.dpuf

When I was eighteen, I decided to see a therapist and psychiatrist for the intense mood swings that had plagued me for most of my life. I was initially told that my deep depressions were the result of PTSD. I was prescribed fluoxetine (brand name Prozac), which only made the agitation worse. And I was still depressed.

At 22, I relocated to Wisconsin and began the search for something, anything, that would finally help me feel “normal.” The misdiagnoses continued: major depressive disorder, for which I was prescribed Abilify and trazodone. I felt amazing on Abilify for about two weeks, and then I crashed. Trazodone made me a zombie. (Note: It is not atypical for antipsychotics to be prescribed to treat both MDD and bipolar disorder.)

Bipolar disorder is most often misdiagnosed in its early stages, which is frequently during the teenage years. When it is diagnosed as something else, symptoms of bipolar disorder can get worse. This usually occurs because the wrong treatment is provided. Other factors of a misdiagnosis are inconsistency in the timeline of episodes and behavior.

-healthline.com

When I was 24 and in my first “adult job” with health insurance, I found a wonderful psychiatrist who, over the course of several sessions, examined my family history and asked very specific questions to find the root of my illness. At first, I didn’t even think to mention my “up” periods, because even with the agitation and sleeplessness, I actually felt good–and no one goes to the doctor when they’re feeling well. But upon deeper probing, he came to a conclusion: first bipolar II, then, after further investigation and a few weeks of mood tracking in a journal, rapid-cycling bipolar I.

That first year was rough. I cycled so frequently that the days were exhausting. One day, I bounced between depression and mixed episodes several times in a single 24-hour period. Slowly but surely, the medications my doctor had prescribed (venlafaxine/Effexor, lamotrigine, and lithium) began to take effect. I began to stabilize. There were no more florid creative periods, but I was also able to sleep for more than an hour a night for the first time in weeks. My misery began to ebb, and though it didn’t disappear completely (a dysfunctional marriage contributed, among other things), I began to feel like a person again instead of a defective thing that needed to be turned off and fixed.

Aside from pharmaceuticals, NAMI’s website mentions cognitive-behavioral therapy, psychotherapy that focuses on self-care and stress management, and, in rare cases, electro-convulsive therapy (ECT). Learning to recognize the triggers for each type of episode is key; one suggestion offered by the numerous therapists I’ve seen over the years is mood tracking/journaling.

However, I had to stop at one point because, in the heyday of my illness, I began to obsess over the cycles, sometimes tracking up to ten or eleven times a day. Instead of the journaling soothing my mind, I began to worry that I was untreatable. I found my mood journal during a recent move and it was difficult reading, to say the least. But it was also a reminder of how far I’ve come and how much my quality of life has improved since receiving a proper diagnosis.

These days, I’m doing much better. My medications have been adjusted slightly to accommodate the deep depressive episodes I’m prone to during the fall and winter months, but I am proud of myself for being able to recognize that the winter storm was a-comin’. Three years ago, I would not have been able to see the symptoms for what they are: a warning sign and a signal that I need to not only keep up with my medications, but to practice good self-care. In the past, I saw fall and winter as something awful that I had to endure. Now, I realize that I can still enjoy life even when the days begin to get longer and darker. The seasons are no longer a metaphor for the overall “climate” in my head.

How long did it take for you to receive a proper diagnosis, readers? Are you taking care of yourselves as winter approaches? I hope you’re all doing well and staying healthy and safe. And spread the word–this illness is massively misunderstood, even by mental health professionals, so it’s our job to reach out and counter-strike against the misinformation and discrimination.


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News Day Tuesday: Childhood Mental Illness

News Day Tuesday, ptsd, rapid-cycle bipolar disorder, relationships, stigma

Good afternoon, readers! This week, I’m featuring an article from NPR related to the early detection of mental illness in children. Child psychologist Rahil Briggs states that half of all children show signs of mental illness before age 14.

On a personal note, I began experiencing symptoms of post-traumatic stress disorder around age seven or eight. My mother had gone to prison when I was six years old, and I went twice a month to visit her at the correctional facility that was several hours from my home. By this point, nightmares were a common occurrence–I’d had them regularly since age five–so my guardian and other relatives didn’t think much of it when the frequency increased slightly after these visits began. There was some talk of finding a therapist for me, but the idea was abandoned.

One of the earliest memories I have of PTSD-related symptoms was one night when I was attempting to play chess with my aunt in the basement of my grandmother’s home, where I lived for the majority of my childhood and adolescence. I began to feel odd, detached from my own body and my surroundings. I remember saying to my aunt, “Do you ever feel like you’re in a dream?” because that was the only way I could describe it at the time.

She had no idea what I was talking about and gave me a strange look, a reaction for which I can’t exactly blame her–if I weren’t “in the know” about the symptoms of PTSD, I would have found such a statement very strange.

As a child, I was generally calm and reserved, but I did occasionally “act out.” I would get panicky and anxious, a tiny ball of pent-up energy and what I can only describe as rage at nothing in particular. That energy had nowhere to go, so it was directed inward, causing lasting damage before finally exploding outward. I would storm around the house in a dark mood, only to erupt moments later in a fit of crying so intense I felt like I couldn’t breathe.

My family was helpless to help me because they didn’t understand–or perhaps didn’t want to accept–the reality of what was happening to me. Bipolar disorder, which has spread throughout the family tree like Spanish moss, was beginning to wreak havoc on my still-developing brain.

Childhood mental illness is a tricky subject. It’s hard to recognize, and it’s terrifying, both for the sufferer and the child’s loved ones. It can strike anyone at any time, regardless of socioeconomic class or education level or how strong the family’s ties are. Therefore, it’s especially important for parents to remember and impress upon their children that it is an illness like any other and is not a moral or character judgment. It is not evidence of parental failings or proof that the child has not been loved enough. It simply is, and the earlier it is detected, the earlier treatment and healing can begin.

Did you start showing signs of mental illness in childhood, readers? How did your family/caregivers react?


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Recovery is a verb: It’s what you do!

a cure for what ails you, anxiety, call for submissions, medication, rapid-cycle bipolar disorder, relationships, three hopeful thoughts, Uncategorized

I’m not going to lie–moving to Baltimore has been a bit of an adjustment for me. The whole new city, new places, new people thing doesn’t faze me, partly because I’m here with someone I love and care for deeply and can lean on, and partly because I was so desperate to get away from the Midwest, to start fresh and re-invent myself again.

The part that’s scary is not having much of a support system yet. I’ll admit it; I’m frightened because right now I don’t know many people and the ones I’ve met (and like immensely!) are my fella’s classmates. I’m in that awkward transitional phase where an introvert suddenly has to start over and find friends in the area to hang out with, and as someone who’s generally a homebody, it’s tough. It’s especially hard right now because I’m taking a gap semester to adjust, work on the blog and CTL, and find a grad school down here to continue my work toward a Master’s in Counseling Psychology. What that translates into is a lot of long days where I have to figure out what to do with myself.

I’ve had a rough few days. It always seems to hit around this time of year–I love autumn and it’s always been my favorite season, but as someone with relatively severe bipolar disorder, my brain chemistry doesn’t like the changing of the seasons so much. I’m hopeful that this year it won’t be so bad, as I’ve heard the seasons are a lot milder here in the Southeast. Still, I came to the realization last night that I need to change my meds a little bit, which is nothing unusual for me. (I have some beef with the texture of my uncoated lamotrigine tabs, which makes snapping them in half to add a half-dose for nighttime a little unpleasant texturally-speaking, but that seems pretty minor in the grand scheme of things.)

Important side note and disclaimer: I don’t recommend anyone tweaking their meds without the express permission and guidance of a psychiatrist–luckily, mine helped me develop a seasons guide to use in situations like this, where I’m unable to get in to see a doctor to make adjustments. I’m still within the prescribed dose range and am only doing this to get myself through until I’m able to start seeing a psychiatrist down here.

The other night, I finally opened up. My last relationship–a five-year marriage–was somewhat disastrous and left a ton of emotional damage. As some of you may remember, I was out of work for thirteen months because I was simply too ill to hold down a job with regular hours, and staying inside most of the time with little to do means I got a lot worse before I started getting better. I don’t want to become a dependent. I don’t want to be needy. I want to be a partner, a strong woman who is capable of supporting herself and living her own life and not feeling sad and lonely and, perhaps worst of all, soul-crushingly bored when I’m alone during the day.

To counter this, I’ve been making myself a little “schedule” for each day, just little things I can do to keep myself busy so that at the end of the day, I feel like I’ve accomplished something. It helps a little; I don’t feel as melancholy and like I wasted the day. But it’s still very much a process. Recovery is not something you either have or you don’t. It’s not like you either are or aren’t “recovered.”

Each of us has natural ups and downs in life, regardless of how well-medicated we are. We can take our pills every day and go to therapy and exercise and be social and do everything right, and we will still have low periods. It’s the nature of the illness. It doesn’t mean that we’ve failed on any level or that, as I believed for years, that we’re unsuitable partners, sons, daughters, friends. It just means that we have an illness and we’re doing everything we can to fight it. Despite our best intentions, it is always going to be there, and I’ve found that accepting that fact has it a lot easier to live with.

I’m trying to make friends with my brain again. I’m trying to make friends with the ugly voice in the back of my mind that tells me I’m not enough. It’s the same one that brings up such tiny, insignificant things from decades ago and nags me about how these events, most of which I had little control over, make me bad or less-than in some way. I talk to the negative thoughts. I tell them to shut up if I’m feeling peevish or overwhelmed, but I also try to be sympathetic. I try to rationalize with the parts of me that are still trying to drag me down.

I still externalize what I’m feeling and pretend I’m a therapist and my client is me-but-not-me, a person who has the exact same concerns and emotions and neuroses that I do. If I separate myself from the negative feelings and thoughts, it’s easier to cope. I feel a sense of power over the thoughts. I counter them with the A-B-C-D-E method of learned optimism, which, thankfully, is effective more often than not.

And most of all, I am still working hard to be kind to myself every day. When I’m feeling bad, I try to remind myself of everything I’ve accomplished so far in spite of these huge obstacles and the weight I’m still carrying around.

On a happier note, I found out that Johns Hopkins offers free counseling to students as well as family members and significant others, so I’ve put in an appointment request for short-term counseling to get me through until my Medicaid (ugh) paperwork is finished and I can find a long-term therapist and psychiatrist again.

In the meantime, I’m trying to practice good self-care and take pride and enjoyment in the little things in life, whether it’s nailing a tough piano piece or simply tidying up the apartment. I don’t want to go back to my life being all about pain. I want to keep moving forward, to keep doing more. I have huge goals for myself in life, and I refuse to let this illness keep me from accomplishing them. My stubbornness has kept me alive for 27 years, and I need to harness that and use it as a recovery tool.

Where are you in your recovery, readers? Do you have any helpful tips to share?

As always, stay safe and lovely and well. I’ll see you all again next Tuesday for another exciting News Day! And keep those submissions coming–I want as many unique voices and stories on the blog as possible!

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This week has an been a wild ride!

a cure for what ails you, medication, ptsd, rapid-cycle bipolar disorder, three hopeful thoughts

This story actually starts at the beginning of July, about a week after we moved to Baltimore. I applied for Medicaid through the healthcare marketplace, as did my fella. Since we listed each other on our applications (not knowing any better) and he filed after me, his app bumped mine out. I was never informed (oops), so I sat around for over a month wondering why I couldn’t get coverage and going through the frustration of weekly phone calls to check on my application, to no avail.

So that brings us to this week, when I finally ran out of my carefully-rationed venlafaxine. I’m supposed to take 75 mg a day, and had been taking 32.5 every other day to make sure I could stretch it because I had no other options. I took my last dose on Monday, and it took about a day and a half for the symptoms to start up. And man, did they come back with a vengeance.

I had two nearly-sleepless nights because of the brain zaps and headaches. My application had been received, Medicaid promised on Tuesday, but I had to give them more time to get me an ID number. Meanwhile, the depressive symptoms, combined with the stress of the whole unfortunate situation, snowballed into something truly awful.

The little sleep I did get this week was plagued by night terrors, involuntary twitching, and (so I’ve been told) a lot of whimpering in my sleep, some of which woke me up. I finally got my scripts filled today, after a bit of a fight regarding the dates on the prescriptions, then came home and promptly collapsed after taking one of my newly-procured venlafaxine.

Moral of the story: Withdrawal is exhausting. It’s hard on the patient, and it’s hard on the patient’s loved ones. Fortunately, my brain immediately grabbed that medication and held onto it ferociously, and I woke up feeling much better (perhaps because I slept like the dead for two hours).

This week was a test of my will to fight and my mindfulness skills. I didn’t cope as well as I had hoped–little things sent me into tears, and I was generally irritable the entire time. I didn’t like being around myself. I was plagued by guilt. I felt, for the first time in years, trapped in my body and helpless to fight my invisible tormentor–the bipolar disorder that had, once again, taken hold despite my best efforts to fix the situation.

The good news is that I’m on the mend. I now have insurance, so I can start shopping for a good psychiatrist/therapist/every other kind of doctor I have to see because my body’s kind of a wreck and I have a bunch of chronic illnesses that tend to require a lot of maintenance.

Have any of you had to detox against your will? I hope not, but from what I’ve been reading, it’s frighteningly common. Stay safe, readers. Hang in there–it’s finally the weekend, and I hope all have a lovely one. 🙂

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News Day Tuesday: Jane Doe V. Harris County, Texas, Sheriff Hickman

News Day Tuesday, stigma

For my first News Day Tuesday, I’d like to cover the case of Jane Doe V. Harris County, Texas, and Sheriff Hickman, which I believe is a prime example of the shoddy treatment rape victims receive when they seek help from the justice system. I know that this is not always the case–however, Jane Doe’s case is a particularly egregious example of the abuse that can occur when a mentally ill person is jailed instead of receiving proper mental health care.

You can read the entire transcript here; however, to paraphrase, Jane Doe was raped and had a mental break while testifying against her rapist. She was taken to a psychiatric facility for treatment; however, upon her release, she was arrested and jailed

While in jail, Jane Doe was subjected to physical and psychological harm. She was repeatedly assaulted by both inmates and jailers and denied access to necessary medical treatment, most notably her psychiatric medication.

At one point, jailers tried to convince her that her grip on reality was so distorted that she was the one being charged with Aggravated Sexual Assault and that her rapist was the victim.

Jane Doe later filed a lawsuit against Harris County, Texas, and Sheriff Hickman.

Again, you can read the entire document for yourself here, but please be aware that the content is disturbing and may be distressing to some readers.

The point I’m trying to make here is that it can be a scary and dangerous world for us, the people living with mental illness. I believe even one story like this is too many, and it baffles me that people continue to wonder why rape victims often don’t come forward, let alone pursue charges against their abusers. The risks, simply put, can feel too high for the potential “reward” of seeing their rapist behind bars, especially in a time when having a mental illness is still seen as a character flaw and a punishable offense.

Be safe out there, readers.

New Risk! Story!

Authoress, call for submissions, news and goings-on, rapid-cycle bipolar disorder, three hopeful thoughts

Happy Caturday, readers!

Just wanted to post a quick update to let you know that I’m still here and that I finally got it together enough to whip up a demo for the lovely Kevin Allison of the Risk! podcast. I performed in the Live from Milwaukee show in November and he approached me shortly before Christmas to see if I wanted to do another story on growing up/living with bipolar disorder, which I instantly agreed to–unfortunately, life kept getting in the way and I kept procrastinating. Fortunately, the demo is complete and I’m just waiting on my potato-quality internet to send it off. 🙂

On a more personal note, I’m relocating with Paul to the Baltimore-ish area in about a month and a half and am really looking forward to scoping out the advocacy and storytelling scenes down there. Also, I really want to branch out and start interviewing/gathering stories from other people living with mental illness, so if anyone’s interested in participating, definitely reach out.

Big things ahead, readers! This girl is hungry.

Fabulous Las Vegas.

major depression, medication, rapid-cycle bipolar disorder, stigma

Paul took me to Las Vegas for our anniversary this weekend, which I loved! What I didn’t love, however, was the continued downward slide of my emotions into a Deep Depression.

Let me explain.

On Thursday night, when we landed and walked the Strip a bit, I said to him, “I feel like it would be impossible to be depressed in this town.” (Ha!)

I felt okay on Friday. Then Saturday happened, though it might be more accurate to say that nothing happened at all–externally, at least. I woke up early on Saturday (thanks, jet lag and associated temporal shenanigans!) and felt a little off but was fairly certain I could shake it off. It was a beautiful, sunny day, which ironically has always been the toughest kind of day for me. Sometimes, I feel as though I’m genetically hardwired to hate sunny days, because they tend to make my moods worse. (More on that in another post.)

I took a bath in the fantastic tub in our suite at the Cosmopolitan, all the while ruminating on how the world was just going on around us. We spent lots of time talking and cuddling. I went back to sleep around 10 AM until almost 1 in the afternoon and didn’t feel any better.

We went out and explored a little, which distracted me enough to lift my spirits a little. Then we went back to the room for a few hours to rest up before going to Zombie Burlesque–which, by the way, was fantastic!

My fella napped peacefully for about an hour and a half. I, meanwhile, was miserable. I cried for a while, then went out on the balcony to smoke, then cried out on the balcony, then cried when he was in the shower, then tried not to cry while we were out and ran into a snafu with the tickets.

The show was wonderful and made me feel better because it was a very welcome distraction. The rest of the night was wonderful and I thought to myself, “Maybe I’m getting better. Maybe it was one of my weird one-offs.”

We woke early on Sunday morning to catch our flight and I felt strange and out-of-sorts in a way that I knew was a warning but stubbornly ignored. I cried on the first plane. I cried on the second plane. I cried in the car on the way home. I cried when we got home. I cried in the tub that night. I cried before bed. And this morning, I really cried.

I found out that not only was my psychiatrist unwilling to refill my meds, it was that, despite reassurances two weeks ago that it would be taken care of, my chart had been closed due to my inability to pay because, hey, divorce and unemployment and not being able to pay for insurance on your own can really mess things up.

I managed to fork over the almost $400 required to even find out if my doctor had a same-day available–thankfully, he did–which means my Chapter 7 filing is now even further away. My little nest-egg of over $1,000, which I had so carefully saved up and budgeted for, will be completely gone after rent this month. I will be back to where I was a year ago.

I took an Ativan and another bubble bath, Paul and one of the cats at my side to make sure I was okay, and am now calm enough to blog about this. I plan on doing some research this week on how temporal changes and jet lag can mess with bipolar symptoms, but now all I’m doing is biding my time until 6:00 when I can finally get in to see my psychiatrist and get my medications refilled.

I’m left with an overwhelming dread, however, and a fundamental disappointment in how the healthcare system is run. I’m not sure how it’s even legal to deny someone access to what is, quite frankly, life-saving medication on the basis that they are unable to pay due to a whole bunch of awful circumstances that are completely beyond their control. Even if it is, it’s definitely not ethical.

But it appears that, for now, it’s just one of those things. Wisconsin, where I currently live (but hopefully not for long–my fella is applying to grad schools around the country and I plan to follow) is definitely not a progressive state when it comes to mental healthcare. It’s like the entire government is violently allergic to even the idea of reform. And unfortunately, it looks like I, and many others like me, are going to be stuck in this (leaky, shoddily built) boat until it finally sinks. I’m just hoping I can jump ship and move away before it gets really bad.