A Wild Blogger Recognition Award Appears!

Authoress, bipolar disorder, endometriosis, rapid-cycle bipolar disorder, stigma, three hopeful thoughts

Jeanette at My Life with PTSD & Bipolar: Mental Health Matters kindly nominated me for
Write a brief story about how your blog began. I’ve been running The Dissociated Press for five years now (holy cats, time flies!) and have been documenting my journey to mental health–or at least, relative stability and improved daily functioning. When I started this blog in 2013, my life was a total mess. I was in an unhappy marriage and missing a lot of work because I was freshly diagnosed with bipolar 1 and adjusting to my new medications. I ended up losing that job, which was a major low point.

There have been a lot of low points throughout my blog-writing history, but things have dramatically improved in the last couple of years. I escaped from that unhappy, unsupportive marriage, enrolled in graduate school for clinical mental health counseling at a great school, and got engaged to a lovely, wonderful man.

I still hit depressive episodes from time to time, but unlike my pre-medication, bad relationship days, I take comfort in the knowledge that my life is so much better than I ever could have imagined. I have a wonderfully supportive partner, and his family is incredibly encouraging of me sharing my journey. My classmates have expressed appreciation for my candor, and I’ve been able to help a lot of people through my disclosures.

Advice for new bloggers is something I haven’t really thought about, but my main piece of advice is to write for yourself first and foremost. TDP has evolved over time–at first, it was a place for me to get my thoughts and experiences out into the ether in hopes of finding others who were also struggling.

Also, I like to focus on and directly address my readers as a group in my posts and always try to end a post with a positive thought or insight. It prevents the blog from feeling dreary and helps promote the overall message: recovery is possible, and recovery never looks the same for everyone. Your journey matters. Your message matters. Your experiences matter.

As I’ve gotten healthier and stopped focusing so much on my illnesses (which are still a main focal point of the blog, albeit in a different way), I realized that my relatively small following was a great audience for information about the stigma surrounding mental illness.

I realized that everyone, but especially others living with my specific conditions (PTSD with depersonalization/derealization and rapid-cycling type 1 bipolar disorder) could benefit from learning about the latest news and treatment options. I’m building up quite the library of scholarly articles and studies, and if there’s enough interest, I plan to post a few quick-and-dirty rundowns of them.

Again, I can’t thank Jeanette for this nomination–it came out of nowhere and I feel very honored about the whole thing and appreciate being recognized for my work. Validation and recognition for what I’m doing always feels nice! Also, the badge image is really cute.

My Picks for Nomination:

The Global PTSD Survivor Blog

Bloomin’ Uterus (a blog about endometriosis, which I also have)

Ruth at PTSD – Accepting, Coping, Thriving

 

 

News Day Tuesday: BiAffect App Links Keystrokes with Bipolar Episodes

a cure for what ails you, bipolar disorder, News Day Tuesday, rapid-cycle bipolar disorder, three hopeful thoughts

Greetings, readers!

It was a bit of a challenge to find an article for this week, but I finally stumbled upon something that could make a huge difference in how we track our moods. There’s a new app called BiAffect that uses your keystrokes, frequency of texting, and social media app patterns to track manic and depressive episodes.

To find out whether a user might be experiencing a manic or depressive episode, the app tracks typing speed, how hard keys are pressed and the frequency of the use of backspace and spellcheck.

chicagotribune.com

I know there are a lot of people who dislike the idea of being tracked in any sense, which is totally fine. However, I feel a bit more comfortable with it knowing that it comes directly from a research group. It’s only available for iPhone, which is kind of a bummer because I’m a die-hard Android user.

I wish something like this had been around in 2013, when I was deep in the throes of exhausting rapid-cycling episodes. I was newly diagnosed, but the challenge of finding the right combination and doses of medication, the loss of my job (probably due to my cycling), and the overall disintegration of my marriage had more or less temporarily erased any benefits or relief I found from my diagnosis.

One of my long-time friends mentioned that he noticed I was posting a lot more on Facebook when I was manic than when I was depressed. Like, a lot. Even now that I’m stable and successfully medicated, I still pay close attention to what and how often I post. When I’m more energetic and feel like interacting with others, I find myself wondering if it’s because I’m manic, hypomanic, or just…not depressed.

When you’re living with bipolar disorder, it’s a constant question of Column A, Column B, Column C, or a bit of each. You learn to analyze your moods and energy levels, and this tracking can quickly become obsessional.

I see this app as a double-edged sword. On the one hand, it would save those of us who pay attention to our moods a ton of work. On the other, those of us who are prone to preoccupation and overall obsessional thinking could end up checking in a lot more often than usual.

If BiAffect is released for Android, I’m for sure going to jump on it, at least for a trial run. It seems like it could be a useful tool for mental health care providers and patients alike–rather than having to drag in pages and pages of mood diaries, we could pop open an app and have the data right there at our fingertips (literally). And, at least in theory, it seems like any sort of self-report bias would be removed, or at least mitigated. I know I’ve been guilty of fibbing a bit in my mood diaries due to the shame that comes from realizing just how sick I am.

What do you think, readers? Would you give something like this a spin, or do you find it intrusive? Let me know! I’ll be keeping an eye on this one.

Until next time, stay safe and remember to be excellent to yourself.

News Day Tuesday: Mental Illness and Prison

bipolar disorder

Good afternoon, readers! First of all, I want to share some big news of my own–on Thanksgiving, on the rooftop of a family friend’s townhouse, my fella proposed to me! His parents and sister were there, which made it so special. I could not have asked for a more perfect guy or a more beautiful memory.

Now, on to the meat of today’s post–the treatment of the mentally ill in the United States penal system. I found a wonderful piece of investigative journalism (courtesy of the Boston Globe) that follows one inmate, Nick Lynch, through his release from prison and his adjustment to life on the outside.

Lynch, twenty-six years old and diagnosed with bipolar disorder, had been incarcerated for eight years at the time of his release. His father had made plans for the two of them–going back to college was a huge goal, undergraduate for Nick and graduate school for his father. However, as Russell and Cramer note, “But Nick was sicker now than when he’d gone to prison.”

In prison, Lynch received little in the way of mental health care, and his illness was exacerbated by being segregated. Near the end of his sentence, he attempted suicide, which was the final push needed to secure better mental health care for him. This is deplorable and only serves as one more tragic event in the ever-mounting heap of stories of how the very systems designed to protect us–people with mental illness–fail, often with tragic consequences.

While prison officials defended the course of action taken at the facility, Lynch’s father tells a different story, stating that he was the one who had to push to secure appropriate treatment for his son.

The article is lengthy, but it follows Nick’s saga of treatment, the overall difficulties navigating the mental healthcare system, and his return to prison. I strongly encourage you to read the entire piece here–it is a wonderful example of the type of exposé we need to start making a difference in the lives of those who need it most.

This brings me to my next point–I’ve been meaning to do a series of sorts about deinstitutionalization in the United States, which I’m hoping to get started in the coming weeks. In the meantime, let me know if there are any specific topics you’d like me to go more in-depth on.

And, as always, stay safe and lovely, readers. I’ll see you next time.


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News Day Tuesday: Bipolar Awareness Day!

a cure for what ails you, explanations, major depression, medication, mood diary, News Day Tuesday, ptsd, rapid-cycle bipolar disorder, stigma, therapy

Happy Tuesday, readers! Today (October 4th) is Bipolar Awareness Day, so I wanted to share an article with you that outlines the basic symptoms (for the uninitiated, as I know there are some new readers here) as well as what’s on the horizon in terms of treatment.

First of all, let’s hear about what bipolar disorder actually is. I’m referencing bt.com for the purposes of this tidbit, as the article I found gives a really great Reader’s Digest condensed version of the illness.

National charity Bipolar UK characterise the condition as “a severe mental health illness characterised by significant mood swings, including manic highs and depressive lows”, and note that, “the majority of individuals with bipolar experience alternating episodes of mania and depression”.

According to this article, it takes 10.5 years on average (in the UK) for people with bipolar disorder to be properly diagnosed. The National Depressive and Manic Depressive Association (NDMD) paints a similarly grim picture: it can take ten years or more for a diagnosis to be reached, and 69% of cases are misdiagnosed.

What are the symptoms?

There are two sides to bipolar: mania and depression.

During a bout of depression, it is possible to feel: grumpy, without hope, guilty, self-doubting, suicidal, pessimistic, worthless, lacking curiosity and concentration.

And with mania: elation, full of energy, ideas and plans, easily distracted, feeling invincible, risky behaviour including spending huge amounts of money.

Both can feature: lack of appetite, insomnia and delusions.

-bt.com

My experience began very early. I remember fits of agitation and depression as early as eight years old, which at the time was chalked up to the incredibly rough hand I was dealt–a broken home, a mother who struggled with bipolar disorder herself as well as alcoholism, extreme bullying, and persistent nightmares (which were later diagnosed as a feature of PTSD). NAMI states that rapid-cycling bipolar disorder, the most severe form of the illness, seems to be more common in individuals who begin exhibiting symptoms early in life.

From NAMI.org:

Early Warning Signs of Bipolar Disorder In Children and Teens

Children may experience severe temper tantrums when told “no.” Tantrums can last for hours while the child continues to become more violent. They may also show odd displays of happy or silly moods and behaviors. A new diagnosis, Disruptive Mood Dysregulation Disorder (DMDD), was added to the DSM-5 in 2014.

– See more at: http://www.nami.org/Learn-More/Mental-Health-Conditions/Bipolar-Disorder/Overview#sthash.l0XKtkSy.dpuf

When I was eighteen, I decided to see a therapist and psychiatrist for the intense mood swings that had plagued me for most of my life. I was initially told that my deep depressions were the result of PTSD. I was prescribed fluoxetine (brand name Prozac), which only made the agitation worse. And I was still depressed.

At 22, I relocated to Wisconsin and began the search for something, anything, that would finally help me feel “normal.” The misdiagnoses continued: major depressive disorder, for which I was prescribed Abilify and trazodone. I felt amazing on Abilify for about two weeks, and then I crashed. Trazodone made me a zombie. (Note: It is not atypical for antipsychotics to be prescribed to treat both MDD and bipolar disorder.)

Bipolar disorder is most often misdiagnosed in its early stages, which is frequently during the teenage years. When it is diagnosed as something else, symptoms of bipolar disorder can get worse. This usually occurs because the wrong treatment is provided. Other factors of a misdiagnosis are inconsistency in the timeline of episodes and behavior.

-healthline.com

When I was 24 and in my first “adult job” with health insurance, I found a wonderful psychiatrist who, over the course of several sessions, examined my family history and asked very specific questions to find the root of my illness. At first, I didn’t even think to mention my “up” periods, because even with the agitation and sleeplessness, I actually felt good–and no one goes to the doctor when they’re feeling well. But upon deeper probing, he came to a conclusion: first bipolar II, then, after further investigation and a few weeks of mood tracking in a journal, rapid-cycling bipolar I.

That first year was rough. I cycled so frequently that the days were exhausting. One day, I bounced between depression and mixed episodes several times in a single 24-hour period. Slowly but surely, the medications my doctor had prescribed (venlafaxine/Effexor, lamotrigine, and lithium) began to take effect. I began to stabilize. There were no more florid creative periods, but I was also able to sleep for more than an hour a night for the first time in weeks. My misery began to ebb, and though it didn’t disappear completely (a dysfunctional marriage contributed, among other things), I began to feel like a person again instead of a defective thing that needed to be turned off and fixed.

Aside from pharmaceuticals, NAMI’s website mentions cognitive-behavioral therapy, psychotherapy that focuses on self-care and stress management, and, in rare cases, electro-convulsive therapy (ECT). Learning to recognize the triggers for each type of episode is key; one suggestion offered by the numerous therapists I’ve seen over the years is mood tracking/journaling.

However, I had to stop at one point because, in the heyday of my illness, I began to obsess over the cycles, sometimes tracking up to ten or eleven times a day. Instead of the journaling soothing my mind, I began to worry that I was untreatable. I found my mood journal during a recent move and it was difficult reading, to say the least. But it was also a reminder of how far I’ve come and how much my quality of life has improved since receiving a proper diagnosis.

These days, I’m doing much better. My medications have been adjusted slightly to accommodate the deep depressive episodes I’m prone to during the fall and winter months, but I am proud of myself for being able to recognize that the winter storm was a-comin’. Three years ago, I would not have been able to see the symptoms for what they are: a warning sign and a signal that I need to not only keep up with my medications, but to practice good self-care. In the past, I saw fall and winter as something awful that I had to endure. Now, I realize that I can still enjoy life even when the days begin to get longer and darker. The seasons are no longer a metaphor for the overall “climate” in my head.

How long did it take for you to receive a proper diagnosis, readers? Are you taking care of yourselves as winter approaches? I hope you’re all doing well and staying healthy and safe. And spread the word–this illness is massively misunderstood, even by mental health professionals, so it’s our job to reach out and counter-strike against the misinformation and discrimination.


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News Day Tuesday: Childhood Mental Illness

News Day Tuesday, ptsd, rapid-cycle bipolar disorder, relationships, stigma

Good afternoon, readers! This week, I’m featuring an article from NPR related to the early detection of mental illness in children. Child psychologist Rahil Briggs states that half of all children show signs of mental illness before age 14.

On a personal note, I began experiencing symptoms of post-traumatic stress disorder around age seven or eight. My mother had gone to prison when I was six years old, and I went twice a month to visit her at the correctional facility that was several hours from my home. By this point, nightmares were a common occurrence–I’d had them regularly since age five–so my guardian and other relatives didn’t think much of it when the frequency increased slightly after these visits began. There was some talk of finding a therapist for me, but the idea was abandoned.

One of the earliest memories I have of PTSD-related symptoms was one night when I was attempting to play chess with my aunt in the basement of my grandmother’s home, where I lived for the majority of my childhood and adolescence. I began to feel odd, detached from my own body and my surroundings. I remember saying to my aunt, “Do you ever feel like you’re in a dream?” because that was the only way I could describe it at the time.

She had no idea what I was talking about and gave me a strange look, a reaction for which I can’t exactly blame her–if I weren’t “in the know” about the symptoms of PTSD, I would have found such a statement very strange.

As a child, I was generally calm and reserved, but I did occasionally “act out.” I would get panicky and anxious, a tiny ball of pent-up energy and what I can only describe as rage at nothing in particular. That energy had nowhere to go, so it was directed inward, causing lasting damage before finally exploding outward. I would storm around the house in a dark mood, only to erupt moments later in a fit of crying so intense I felt like I couldn’t breathe.

My family was helpless to help me because they didn’t understand–or perhaps didn’t want to accept–the reality of what was happening to me. Bipolar disorder, which has spread throughout the family tree like Spanish moss, was beginning to wreak havoc on my still-developing brain.

Childhood mental illness is a tricky subject. It’s hard to recognize, and it’s terrifying, both for the sufferer and the child’s loved ones. It can strike anyone at any time, regardless of socioeconomic class or education level or how strong the family’s ties are. Therefore, it’s especially important for parents to remember and impress upon their children that it is an illness like any other and is not a moral or character judgment. It is not evidence of parental failings or proof that the child has not been loved enough. It simply is, and the earlier it is detected, the earlier treatment and healing can begin.

Did you start showing signs of mental illness in childhood, readers? How did your family/caregivers react?


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News Day Tuesday: Jane Doe V. Harris County, Texas, Sheriff Hickman

News Day Tuesday, stigma

For my first News Day Tuesday, I’d like to cover the case of Jane Doe V. Harris County, Texas, and Sheriff Hickman, which I believe is a prime example of the shoddy treatment rape victims receive when they seek help from the justice system. I know that this is not always the case–however, Jane Doe’s case is a particularly egregious example of the abuse that can occur when a mentally ill person is jailed instead of receiving proper mental health care.

You can read the entire transcript here; however, to paraphrase, Jane Doe was raped and had a mental break while testifying against her rapist. She was taken to a psychiatric facility for treatment; however, upon her release, she was arrested and jailed

While in jail, Jane Doe was subjected to physical and psychological harm. She was repeatedly assaulted by both inmates and jailers and denied access to necessary medical treatment, most notably her psychiatric medication.

At one point, jailers tried to convince her that her grip on reality was so distorted that she was the one being charged with Aggravated Sexual Assault and that her rapist was the victim.

Jane Doe later filed a lawsuit against Harris County, Texas, and Sheriff Hickman.

Again, you can read the entire document for yourself here, but please be aware that the content is disturbing and may be distressing to some readers.

The point I’m trying to make here is that it can be a scary and dangerous world for us, the people living with mental illness. I believe even one story like this is too many, and it baffles me that people continue to wonder why rape victims often don’t come forward, let alone pursue charges against their abusers. The risks, simply put, can feel too high for the potential “reward” of seeing their rapist behind bars, especially in a time when having a mental illness is still seen as a character flaw and a punishable offense.

Be safe out there, readers.

Five stigmatizing/problematic phrases and why you should stop using them.

abuse, explanations, stigma, three hopeful thoughts

I’m generally a pretty tolerant and patient person when it comes to talking about mental illness— I want to be polite and educate people and I think it’s counterproductive to get pissed off about every single thing (also, I don’t have the energy for that). That being said, there are a couple of phrases I hear on a regular basis that make my blood boil. They’re often used out of ignorance, not actual malice, which is why I believe it’s so important to call people out and use the mistake as a teachable moment.

1. “I’m so OCD about that!”

What people usually mean: “I have some quirks and like to have some things a certain way.”

Why it’s hurtful: Obsessive-compulsive disorder is a mental illness, and by misusing this phrase, you’re essentially invalidating the everyday struggles of those living with the disorder.

One of the main characteristics of the disorder is obsessive, invasive thoughts, ideas, or behaviors that often interrupt other thoughts or activities. In order to alleviate these thoughts, the person typically has to partake in a certain behavior or set of behaviors (sometimes called rituals)—this is the compulsive part of the disorder.

For example, I’m sure you’ve all heard of the fear of being contaminated/hand-washing obsession/compulsion. What people don’t realize is that many people living with OCD find the disorder distracting, disruptive, and embarrassing. By saying things like “I’m so OCD!” you’re minimizing their very real concerns and struggles and turning it into a cutesy one-liner. Don’t do that.

2. “I don’t want to go to that party; I’m so antisocial.”

What people usually mean: “Well, ‘social’ means you like being around people, right? So ‘antisocial’ must mean the opposite!”

ImageWhy it’s hurtful: This one actually does piss me off because the people who say this are completely misusing the word. It doesn’t even mean what you think it means so in addition to trivializing a very real and serious disorder, you’re also making yourself look like an uneducated ass-hat.

In reality, “antisocial” refers to a specific personality disorder, the hallmark of which is a persistent disregard for the rights and feelings of others. There’s a whole list of diagnostic criteria at the linked page, but the most common example/trope used to describe this disorder is the person who hurts people and feels no remorse for what they’ve done.

People with antisocial PD are not bad people. It’s problematic and can cause a lot of emotional damage, but again, the thing to remember with any mental illness is that the person suffering from it did not cause it.

3. “I’m so bipolar!”

What people usually mean: “I had, like, one mood swing today and it took me off-guard so I’m going to misappropriate a mental illness because of my very general and poor understanding of what it actually is.”

Why it’s hurtful: Like most of the examples on this list, “I’m so bipolar!” is problematic because it minimizes another really serious disorder by presenting it as one-dimensional, and that one dimension everyone knows about is the mood swings. If you ask a person on the street what they think bipolar is, nine times out of ten they’ll say “mood swings.”

That’s why this phrase is so damaging—it completely ignores all the other symptoms of this very complicated illness. I’m assuming most of you have been following this blog for a while, so I’m sure you’re familiar with what goes on in the brain of someone who’s bipolar. (I prefer the term “manic depressive” because while it’s technically outdated, it’s more descriptive than “bipolar,” implying a range of emotions rather than two strict “poles.”)

If you’re new or need a refresher, check out NIMH’s website for an awesome and relatively simple description.

4. “He’s so schizo/psycho!”

What people usually mean: “He is behaving erratically or in a way that does not make sense to me.”

Why it’s damaging: This is two-fold.

First of all, schizophrenia is a particularly severe mental illness; there is no cure, and treatment options are kind of dismal at the moment. When you call someone “schizo” when you’re referring to nonsensical or erratic behavior, you are (once again) minimizing the actual severity of the illness and all of its nuances.

This is bad for one simple reason: it perpetuates misinformation and makes it seem like having a mental illness makes someone “bad,” which perpetuates the stigma.

The same goes for the term “psycho.” I’ve actually cut people out of my life for repeatedly using the term after I’ve explained why it’s so harmful and offensive. “Psycho” usually refers to “psychosis,” which is a break from reality. It can happen for a variety of reasons—trauma, substance abuse, or mental illnesses like schizophrenia (the one most people associate with psychosis) or bipolar type I (psychosis/hallucinations/delusions are not at all uncommon during severe manic or depressive episodes).

You say “He/She is psycho/schizo,” and what happens? People laugh. When you misuse those words (and really, you shouldn’t be using them at all because they’re offensive abbreviations that are always used in a derogatory manner), you’re telling people that it’s okay to laugh at people with mental illnesses because they’re “different.” They’re “crazy.” I’d like to think that the people who fall into this category are simply misinformed, but the reality is that there are a lot of terrible people out there who are unwilling to learn or change their behavior.

5. “She’s crazy!”

What people usually mean: This can mean one of two things. It’s sometimes used as a positive descriptor, in which case it means something like “She’s wild and uninhibited, which makes her fun.” I really don’t have a problem with it being used in that context because “crazy” is one of those words that can be used in a variety of ways, and this one happens to be complimentary. If you want to use that term to refer to yourself as a coping mechanism/making light of the situation, that’s totally fine. It’s when other people begin to use it that it becomes an issue (if you haven’t given them permission to do so). But in general, I still believe that people who aren’t mentally ill have no right to use that word to describe someone.

When it becomes problematic: When it’s used to hurt people or make a generalization about someone’s mental health. I’ve had “You’re crazy” thrown at me hundreds of times in the last twenty-some years, and it has almost exclusively been used to mean “You’re unhinged, you’re different, you’re not like us, there’s something wrong with you.”

That’s what stigma is—perpetuating the idea that the mentally ill are somehow “different” or “wrong,” not like the general public and certainly not worthy of being treated like people who are mentally healthy.

I’m sure you’re having the knee-jerk “Jesus H. Christ” reaction when you read it broken down like that—or at least, I hope you are. I hope you realize that it’s definitely not okay to discriminate against another human being for any reason, and I hope you’re doing your part to call people out and be more mindful of your own phrasing.

What to do when you’re called out: This is pretty simple. There are three steps to dealing with being called out for saying something problematic:

  1. Listen to what the person is saying and make every effort to understand why they’re upset.
  2. Apologize sincerely. Say something like, “I’m sorry for saying x. I didn’t realize it was hurtful, but now that I know, I am going to do my best not to say it anymore.”
  3. And then move on. Don’t get butthurt or dwell on it (“Those mean social justice people! They’re too uptight, they made me feel bad, bawwww.”) Just take it as a learning experience and try to use what you’ve learned to educate other people.

That’s really the only way we can fight this thing, the gigantic stigma-beast that makes life unpleasant, if not downright hellish, for most of us. At some point, we’re going to need people on the outside, allies who aren’t mentally ill (and remember, “ally” is a verb, not a noun) to help spread the word and back up what we’re saying.

The sad reality is that a lot of people are dismissive of our experiences with mental illness because we’re mentally ill, and therefore we’re apparently not credible sources about our own oppression. (Lollll.) And common sense tells us that the more people are fighting this battle, the more people we’re going to reach and the more minds we’re going to change.