Shouting “STOP!” in retrospect (content warning: rape)

a cure for what ails you, abuse, personal experiences, ptsd, relationships, therapy

Hey readers!

I had a great, if intense, EMDR session this afternoon. I’ve mentioned X a few times before, especially in my last post, and he was the subject of today’s sessions.

I’ve mentioned before, in very vague terms, that I have a long history of sexual abuse. Those of you who have listened to the RISK! episode have heard me say it directly: I never talk about it. I’ve been to literally a dozen other therapists in the last eleven years, but due to insurance issues or money in general or whatever, I was never able to see a single counselor for more than a few sessions.

As a result, I am extremely uncomfortable discussing any of the rape-and-what-have-you in anything less than broad terms. I can vividly describe everything else–the physical and emotional abuse, what it did to me psychologically, how the effects have rippled through time and still mess with me to this day. But if you sit me down and ask me to tell you exactly what happened, to describe it? Then I clam up and can’t even say the word “sex” without looking at the floor.

I had to do that today. I had to lay out the details of a memory that I very recently had a flashback about. I had to describe how we were positioned, to talk about that rolltop desk and how I used to lean into it and stay absolutely silent because I knew if I made a sound or asked him to stop, he’d be angry. And when you’re in abuse-victim-survival-mode, avoiding that anger is pretty much all you think about. I just had to get through that moment and then things might be better. (This is called “conditional assumption” or “deferred happiness” and is extremely common in abusive relationships.)

I want to pause to make an important distinction here, since we are talking about rape and consent–by “had to,” I mean that my therapist (who we’ll call S from now on) invited me to talk about my flashback in very general terms: “Can you tell me what the flashback was about?” She never probed for details, and her sensitivity was much appreciated.

We began by identifying my negative false belief: He is raping me and hurting me but I’m not saying anything because “I don’t matter. I have to do this.”

She asked me, as is typical by now, to rate how disturbing I found that belief while I was thinking about the scene I’d described. Then, she asked what I’d like to replace that belief was (and how believable it was to me as I was sitting in her office, pre-EMDR). This is what I replaced that thought with: “I do matter, and I don’t have to do this.”

I’ve probably mentioned this before, but I prefer to use the hand buzzers for EMDR–I’m migraine-prone so the lights don’t work well, and because I have that thing where sudden and/or loud sounds in my left ear trigger an uptick in the dissociation. So, I relaxed (as much as I could) into the couch, a buzzer in each hand, and willingly stepped back into that moment.

It was like entering a time capsule. I was disturbed and amazed at how easily I could reenter the memory. I saw myself, leaned against that desk, slipping my fingers, one at a time, into the grooves in the wood as a distraction. My abuser–my rapist–was not there, only a strange, smooth grey nothingness behind me. It was like my mind wasn’t even going to let me go there, to see his face. I’m actually grateful for that. I imagine my mind saying, “Okay, so you have to relive this a little so you can rewrite it and feel better, but you do not need to see his face. I’ve got your back.”

I was standing in the corner of my bedroom, just at the foot of my bed, and looking across at that girl by the desk, that girl who was me-and-not-me. I saw our dresser. I saw the window–the light outside was, as in most of my memories of X, a strange grey-blue that could have been dawn, dusk, or midnight. In my memories, it is often all three.

S. stopped the buzzers and had me draw a deep breath, as is our custom by now. She asked what I saw, how I felt. Then we started the second round.

This time, the details were clearer–the way the yellow light cast shadows at the corner of the desk, the frayed edges of the area rug behind the dresser. I began to feel angry. I wanted to scream at him to get off her, to let this girl–this child–go. To stop filling her head with bullshit and lies.

I was 18. I’m 29 now. Looking back, I was a baby. I was coming out of this intense childhood full of abuse and anxiety and no one had taught me what a relationship was supposed to look like. The only relationships I saw were dysfunctional ones; later in life, I sought out and clung to what was familiar to me. Unfortunately, what was familiar was also rape-y and weird, which are two words that could pretty accurately sum up my life from ages 17 to 19.

I told S. about my anger. We chatted for a few minutes to decompress, then jumped back in.

This time, I was furious. I was screaming at him, telling him that I am a human being, not something to masturbate into and that I do matter. That I don’t need to perform for anyone. That I am not a dog that does tricks and licks its owner’s boot even after being kicked. 

That my body is mine, and that my ownership means something.

By the end of the session, I found the false belief, the “I don’t matter and I have to do this,” disturbing for a different reason. I find it disturbing that I ever felt that way. And above all, I find it disturbing that another human being was not only capable of doing that to me, but that he enjoyed it.

We’re going to pick up again next Monday. In the meantime, S. told me to keep yelling at him in my head. I left her office with a smile.

You know how in Dogma, Alanis Morissette plays God and absolutely destroys Bartleby with her voice? That’s how the scene with X is going to play out in my head from now on. I’m also picturing the final stanza of “Lady Lazarus” by Sylvia Plath:

Out of the ash
I rise with my red hair
And I eat men like air.

I am wishing you a wonderful week filled with ferocity, dear readers! Y’all come back, now, y’hear?

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Reclaiming my body, or: ¡Viva la Revolución!

a cure for what ails you, abuse, anxiety, dissociation, memories, personal experiences, ptsd, relationships, therapy, three hopeful thoughts

Sometimes, EMDR can take a while.

This week, my therapist and I tried to pin down a common theme in some of my more disturbing memories of X. We essentially started freestyling at each other, throwing out possibilities and ultimately ending up…pretty stumped. She thinks it all goes back to what she calls “the rabbit hole”–dysfunctional patterns with my mother and my other relatives that began when I was a child and are coloring how I interact with the world even now, twenty-odd years later. We also had a really great conversation about body autonomy and ownership, and how I’ve been seeing myself as a commodity for so long and “going along to get along” for pretty much my entire life.

My existence has been defined by one thing: the need to protect myself at all times, to defuse all the bombs, to take all the right steps so I don’t fall into a crack or a lava pit or inadvertently provoke someone else’s rage. I make myself as pleasant and agreeable as possible because I grew up learning that rocking the boat meant someone screaming in your face.

I am a nice person, yes. The whole thing isn’t fake or some survival mechanism from long ago. I don’t see a reason to be unkind to people, when giving a stranger a compliment takes less time and brightens someone’s day. But I am gentle with others because I am so often afraid. As a child, survival meant being quiet, being kind; never confronting, never correcting.

My therapist and I have also spent the last few weeks working with my deep-seated body image issues. It’s a topic I don’t often talk (or write) about because there’s a mountain of shame that comes with it. However, I try to be transparent in my posts and other communication with you, readers, so let me bring you up to date.

My family-of-origin is weird in a bunch of ways. Even if you’re relatively new to the blog, you’re probably aware of this. But one of the most pervasive and insidious messages I received as a child was that my stomach was ugly and needed to constantly be “held in.” You know, like how you sometimes suck in a bit to zip up a new pair of jeans? Like that, except all the time.

Long story short, we were at Disney World when I was nine or ten and was wearing this cute little biker-shorts-and-crop-top deal, neon green and black. I thought I looked so cool with my white bucket hat, despite the fact that it was 95 degrees and I was wearing, well, a bucket hat. We were posing for a picture in front of some palm trees and one of the relatives who’d brought me on the trip poked my stomach and said, “Suck that in.”

Again: I was, like, nine or ten when this happened.

And I had been holding in my “gut” every day for the next twenty years. I was terrified to let anyone see me not “holding it in.” Even as a 90-lb freshman in high school, I still held it in. I was terrified of sleepovers–with friends in school, and with lovers later in life–because I knew I would not have complete control of my body and what it looked like while I slept.

It took two long, very difficult EMDR sessions, a ton of self-care, and lots of encouragement and positive feedback from my fella, but I am slowly letting go of the compulsion to suck in my stomach at all times. As I write this, I’m slouched over like an overstuffed possum* (thanks to our wedding food tasting this weekend!) and I do not care. I know no one here is going to judge me. I am comfortable that I am not some hideous trog if I’m not pretending like I don’t have organs in my abdominal cavity.

The way I view my body changes from day to day, of course, but the last week has felt effortless.

But this is only the first step. My body has never been truly my own. Over the course of my life, I have allowed others to pick at me like gulls on a whale carcass: this one takes my body but nothing else–they use my flesh and forget that I am human. That one only likes me when I’m not sad. This person takes for granted that I will always forgive them. And it goes on and on, the give-and-take-but-mostly-take that made up all but the last three or four years of my life.

Think about that for a moment. Twenty-five years of feeling vaguely “other” in my body, like I was driving a leased car. Mine, but not really mine.

And I have allowed–even willingly participated in–this parceling-out of me, of my body, of my mind, of my experiences. I have done this because submission means safety. If I don’t really care either way, I’ve long said, what does it hurt? Why not let someone else make the decision? Why even bother giving an opinion, if it will make this person happy?

It’s funny that I am just now realizing how dysfunctional this mindset is. Having those thoughts on occasion is natural. Having those thoughts form the basis for every interaction you have with another human being is probably not the healthiest way to go about this whole “life” thing.

Those patterns are why it’s so scary to have finally found a partner who wants all of it at once–even the parts of myself I find the ugliest and most shameful. I am learning that it’s okay to express my opinions, even if I’m not 100% sure the other person shares them. Wedding planning has, on the whole, been full of great opportunities for me to test out the whole “assertiveness” thing without the stakes being too high. For the first time in my life, I feel safe disagreeing with my partner because I know it will not immediately lead to a breakup or abuse.

So, my assignment moving forward is to nurture myself, to keep being me, to keep doing the things I enjoy without worrying so damn much about how it’s going to look or who’s going to judge me. I’ve been doing this, to some extent, for a while (my guy and a certain friend can attest to me publicly howling and barking like a dog through a bronze metal sculpture last summer). I vowed last year to make absurdity common in my life and to ask “Why not?” more often than “Why?” when thinking about doing something. I want to be freer. I want to feel that my body is my own. And most importantly, I want to keep being stable and happy.

Now that you know a bit more of my tragic backstory, readers, how many links have you been able to make between your early childhood experiences and the person you are today?

* This guy right here:

possum-150200

We came home from the tasting and just kinda slouched on the couch like this while the cats prowled hungrily, begging for leftovers.

 

How to feel feelings

abuse, anxiety, personal experiences, ptsd, relationships

It occurred to me the other day that I do not give myself permission to experience the full range of human emotions. In fact, I don’t think I ever have.

As a child, I learned that expressing anger, frustration, or sadness in a visible way (tears, lashing out in age-appropriate ways, and so on) meant being yelled at, often brutally. The yelling often came with personal attacks–most frequently, the dreaded “You’re just like your mother!” Since everyone in the family was quite vocal about their dislike of my mother, that phrase packed a particularly potent emotional wallop, especially for a child not even near the cusp of adolescence.

Later, when I was dating X in my late teens, I was met with the same type of response, although more overt emotional and psychological abuse was the result (and occasionally, the abuse also carried a more tangible element).

I am often described as even-tempered and “sweet.” While I do my best to be kind to others because the world is already a brutal enough place without me adding to it and want to be liked more than almost anything, these traits are due in no small part to my early experiences with learning to stifle my less-desirable emotions.

Earlier this week, I had an evening where I was feeling particularly testy–my post-surgical pain from May 4th was giving me trouble, and Sunday was Mother’s Day, which is always a rough day for me for obvious reasons. I also had an IUD implanted during my surgery earlier this month, so my hormones are in major flux right now.

I remember responding to my fella in ways that I considered “snappish,” though he has since disagreed–I tend to think the worst of myself and perceive myself as ruder or more hurtful than I probably am. Anyway, the end result was that I got massively depressed and disappointed with myself because he is wonderful and does not deserve to be hurt.

I’ve learned since that one of the after effects of being abused is the overwhelming fear that you’re being abusive to your current partner–after all, we constantly hear about the cycle of abuse and how abuse survivors often become abusers themselves. When that fear collides with my already harsh self-evaluation and my tendency to worry about my partner’s well being and satisfaction with our relationship, it creates one hell of an emotional mess.

My guy has been fantastic with comforting me when I cry–because the tears are rarely just about me being snappy and feeling guilty–and reassuring me that it’s okay, that we’re okay. I don’t often snap at others, so when I do, I feel godawful because it’s not the norm. And I’ve been doing extra little things to be thoughtful to soothe myself (and because I genuinely enjoy spoiling him).

Yesterday, I spent most of the afternoon baking a giant chocolate layer cake with Swiss meringue and homemade cream cheese frosting–all from scratch. It was delightful because it kept me occupied–I love baking–and I got to practice a few new skills (piping and making meringue!).

One goal for myself, which I will share with my therapist on Monday, is to allow myself to experience the full range of emotions and not feel bad when I do. Obviously, I don’t want to become a raging monster, but I need to learn that it’s okay to be irritable from time to time and that it doesn’t make me a bad person. I certainly need to address the root cause when it happens, but I am allowed to have those feelings.

How are you with your own feelings, readers? Can you accept them for what they are, or do you place value judgments on them (like me)?

I wish you peace and, of course, sanity and happy thoughts as we sail into the weekend. As always, stay safe, readers!

On Vulnerability

a cure for what ails you, abuse, anxiety, memories, ptsd, therapy, three hopeful thoughts

There are so many words in the English language relating to innocence and vulnerability, and most of them can bring me way down if I’m not careful. They provoke some ancient anxiety that I’ve come to realize, with the help of my excellent therapist, are linked to what she calls my “wounded younger self.” (I was incredibly skeptical of inner child work at first, but it is incredibly effective and incredibly healing.)

“Little” is an adjective that, when paired with certain words that also remind me of innocence, usually messes me up emotionally. That’s the word that got under my skin tonight.

I’ve been feeling kind of “off” the last few days. I recently blocked my mother completely on my phone–including the second number I thought she’d deleted until she used it to contact me after I blocked the first number–and was treated to some really unsettling dreams on Monday and Tuesday night.

Monday’s main feature involved me skipping my grandmother’s birthday party because my mother was going to be there and I knew she’d be drunk. Tuesday’s late-night horror show involved a healthy helping of guilt because I was hiding from her (in a Target, of all places) while she wailed and lamented that she “couldn’t believe [I] didn’t want to talk to her.”

Naturally, this put me in a pretty weird headspace today. Wednesdays are my big clinical days and I do group as well as individual client work. As such, I generally store my feelings away to deal with later and do a pretty good job of not thinking about them at all during the day because I’m 100% focused on my clients. (Side note: I adore them, and I’m bummed that I’m leaving my practicum site in a few weeks!)

On the drive home from class this evening, though, those neglected feelings reared their ugly collective heads and roared.

The anxiety and guilt were so powerful that I considered just going to bed early and sleeping it off.

Instead, I took a shower.

I focused hard on those thoughts and attempted to get a good, cathartic cry in. Nothing happened.

I turned the focus to that wounded younger self I mentioned and took the opportunity to literally hug myself while I waited for the conditioner to work its magic on my decidedly unruly hair. I decided to speak aloud because I’m home alone most days during the week and hey, I knew the cat wouldn’t judge me. (Audibly, anyway.)

I told my younger self that it’s okay. I told her I love her and that I’m sorry she felt like no one could keep her safe. I told her that I’m going to do it. This changed into me speaking to whatever hypothetical future child I’ll end up having. I promised that child to take the best care of it I can and to make sure it never feels afraid or lonely.

And I cried. Instead of stifling it or trying to be tough, I gave myself over to it completely–ugly, wracking sobs. After a while, those sobs turned into relieved laughter that I’m sure sounded like I’d finally gone completely ’round the bend.

I think there’s something to be said for having a good cry.


On Monday, I spoke to my clients in group about the concept of “ghosts”–they had all shared some intense and profound stories about their deepest wounds, their secret shames, their most painful memories. I told them that while they can haunt you, they can’t physically hurt you. You can start to let go of them.

I led them in one of my new favorite exercises, which is “HA!” breathing. Basically, you take a deep breath and push that breath out while making a “HA!” sound. I opened the group with the exercise and invited them to imagine themselves yelling at someone or letting frustration out. I demonstrated (because I am not afraid to look silly anymore), and they loved it. After the big, intense sharing session, I led them in the exercise again, this time instructing them to imagine the “HA!” on the exhale as them blowing out part of their ghosts.

I’m glad it was a hit, and I encourage you all to try it, readers. Howling into the void or, as I called it, “therapeutic yelling,” is incredibly cathartic.

 

Life as a haunted house

a cure for what ails you, abuse, anxiety, dissociation, memories, personal experiences, ptsd, relationships, therapy, three hopeful thoughts

I’ve been having the nightmare again.

In it, I could be seventeen or twenty-nine. In it, I am standing in my childhood bedroom, looking out the window at the front lawn. There’s a weird unstuck-in-time feeling; it could be morning or late at night, but the sky is a flat indistinct expanse over the rooftops and trees. The lighting is confusing, too–is it dusk? Dawn? Just a cloudy afternoon?

His old, beat-up white Buick rolls up to the curb and my stomach twists in on itself, the knots fluttering like anxious birds.

What did I do this time?

He could be in a good mood, or a bad mood, or both, or neither. He could be smiling while walking up to my front door but then want to talk to me, right up close (as Stephen King wrote in my favorite novel of his, Rose Madder).

Or maybe it’s fine. Maybe he’s just going to pick me up and we’ll go hang out with friends or sit in his car down by the river, just talking for hours.

But I know damn well it’s not fine.


I am all ages, all the time. My therapist says that I need to nurture my wounded inner child, which I thought sounded stupid and New Age-y until I actually started trying it out. It’s effective–when I get anxious or depressed, I look at my younger self and pull her close.

You didn’t do anything this time, or any time. It’s going to be okay.

I wish believing was as easy as speaking.


On Thursday, the anxious snakes took up residence in my belly as I cleaned the apartment. My fiance had had a rough day on Wednesday and I knew he was feeling crappy, and also that it had nothing to do with me. He wasn’t rude or snappy with me, but he wasn’t really in the mood to spend much time talking during our nightly phone call. I knew this wasn’t my fault.

But the ghosts, the echoes, they spun a different story. As I swept and cleaned the kitchen floor (which, with two cats, is a neverending chore), the words kept flowing into my mind.

I have to do this right or he’ll be upset.

My fella? He never gets upset with me, ever. I think we’ve had maybe one argument in the entire three years we’ve been together. He is sweet and gentle and kind. We coo over the cats together, make a game out of going grocery shopping, laugh at hideously dark things that we know aren’t supposed to be funny.

But the trauma said,

Do it right, or else. Or else he’ll be mad. Or else no one will love you.

I paused many times during my cleaning spree to speak aloud to myself, to that wounded, younger part.

He is not like X. You were a baby. It was not your fault.

Sometimes, it works, but I’m pretty sure it’s just me handing a squalling child a piece of candy to shut it up. I don’t actually deal with the feelings. I invalidate and suppress and push, push, push until they go away.

My therapist and I have done three EMDR sessions now, and it seems to be a magic bullet for me. The first two sessions dealt with my childhood and centered around two specific disturbing memories and the phrase, “My mother’s anger is not my fault.”

Today, we dealt with X and the nightmare, which has been occurring with alarming frequency. I recently took an elective on domestic violence, and I know that’s what’s stirred all of this up again.


The ghosts are not happy when you call them out. They want to stay hidden and rattle the windowpanes, throw a few dishes when you’re not watching too closely.

And they expect to get away with it.


Today, we embarked on a grand journey of the hell I lived from ages 17 to 19. We worked on the phrase, “I didn’t do anything wrong.” I’m mostly believing it now, but only as it pertains to that one image. I know we have more work, so much more work, to do before I’m healed.

But the most upsetting part isn’t the actual image or the memory. The worst part is how young I was, how vulnerable. X saw that. He latched onto it. He told me his tales of woe and wept insincerity, and I bought it. He took my kindness, my urge to nurture and pacify, as weakness.

I don’t often cry in therapy, but when I do, it’s because that girl back then was so young. She was a baby, even at 17, and I feel overwhelmingly protective of her, this past-me. I’m not sure if it’s because I’m more self-aware now or if it’s some sort of misplaced maternal instinct, but when we’re focusing on a memory in EMDR, I see myself standing beside her. By round three of EMDR*, I have my arms around her and I am holding her close. I am telling her that it’s okay, that she didn’t do anything wrong, that she is good and lovable and so much more than what the trauma says.

And as the session progresses, the frightened, anxious self–the part that believes she did something wrong–becomes defiant. It was amusing the first time it happened in our first session, when the five-year-old self in the memory we used actually kind of yelled back at my mother.

This time, the wounded self snapped, “If he’s pissy, it’s because he’s an asshole. I didn’t do anything wrong.”

This defiance, my therapist says, is a good sign. I think it is, too. Also, it makes me chuckle–I’ve always been pretty stubborn, and time and time again, I’ve seen that if I’m pushed and threatened enough, I will gain the strength and courage to fight back.

As much as I hate that I’m going to be in therapy for a while (my insurance is awesome, but the co-pays add up), as much as I hate that other people dealt enough damage to put me there, I recognize that I am fighting back. That is so much. That is everything.

I am fighting the ghosts. One day, I will drive the last of them from my house and I will finally feel the peace most people take for granted. Right now, I’m actually feeling pretty peaceful–I went into therapy feeling very tense, and as I drove home, every muscle in my body felt loose and relaxed in a way I don’t often get to experience while I’m awake.

I’m going to leave you with this thought, readers. People may have done damage to you, but you are not damaged. You can fight. And I’ll fight right alongside you.

We’ve got this.


* We typically do three or four rounds with the same memory and the same phrases. Your mileage may vary, but my sessions go like this:

  • On a scale of 1-10, how distressing is the phrase (for example, “What did I do this time?”) to you now?
  • On a scale of 0-7, how believable is the phrase you’d like to replace it with? (For example, “His anger is not my fault.”)

I use the hand buzzers because I’m migraine-prone so the blinking light isn’t great (and I find that closing my eyes helps me visualize the memory we’re using). Headphones with alternating sounds between the left and right side can also be used, but since unexpected or loud sounds in my left ear makes the dissociation spike for some reason, we ruled that out.

Bilateral brain stimulation is awesome! The brain is so amazing, how it can bend into impossible shapes, at impossible angles, and not break.

Love your brain, your beautiful “broken” brain, readers.

 

News Day Tuesday: Acronyms! (Or: MDMA for PTSD)

a cure for what ails you, anxiety, dissociation, medication, News Day Tuesday, personal experiences, ptsd

Good morning, readers!

School started last week and there’s been a lot going on in my life on the personal side–my 94-year-old grandma, who essentially raised me as her own for most of my childhood, has been ill and I’ve once again been dealing with anticipatory grief.

Anyway, on a happier note, here’s some news for you about PTSD. (And it’s literally happy–it’s about Ecstasy!)

In a nutshell: those lovable FDA officials just granted MDMA “breakthrough therapy” status as a potential treatment for PTSD. Clinical trials will (hopefully) be easier to come by now, and I am very much looking forward to seeing how this develops.

Important distinction: MDMA isn’t FDA-approved, but this is a huge step in a very promising direction.

Right now, PTSD treatment options are super-limited. My brand is pretty wicked, but my only option for dealing with the symptoms is lorazepam/Ativan. I count myself lucky that I only have depersonalization/derealization, anxiety around crowds, and the occasional nightmare. It could be a lot worse. I’ve written extensively in the past about my experiences with dissociation (hence the name of the blog), but like most things, you get used to it.

But it’s not something anyone should have to “get used to.” None of us should have to accept the symptoms as our “new normal,” and for many, the symptoms are debilitating. That pretty much goes without saying (though of course, I decided to say it anyway).

I recently completed a research proposal for one of my summer classes, and while it was a painful process for someone who’s not a big research fan, it was definitely eye-opening. There has been shockingly little research done on depersonalization/derealization; most of what I encountered deals with “dissociation” in broader terms and the individual disorders are either not specified or are all lumped together in a mass that ultimately provides no insight about the actual conditions.

Anyway, that’s a post for another day. What I’m getting at is that PTSD is an incredibly complicated beast. While some symptoms are consistent, it never looks the same in two different people. Anecdotally, the symptoms can look different at various stages in a person’s life.

Seven years ago, I was having flashbacks (not the dramatic Hollywood kind where you’re literally in the memory–the kind where you sort of space out and the memory plays out in your mind’s eye while you’re pretty much unresponsive to the real world). Then, in 2012, the flashbacks stopped and the depersonalization/derealization got its hooks into me and has been hanging on for dear life ever since.

Like I said, you get used to it. The pain fades. You adjust to never really feeling “real,” to being in this perpetual dreamlike state. When it spikes, I try to welcome it as a new adventure and pay attention to what feels different without getting anxious or judging it as “bad.”

Still, it would be nice if there was something out there that could help just a little. I’ll be keeping my eye on the MDMA  breakthrough and keep you posted on further developments.

In the meantime, readers, what helps with your symptoms? Grounding exercises are one of my favorite things to do if I start to feel anxious. It’s less tedious than counting things.

News Day Tuesday: New treatment for PTSD?

a cure for what ails you, News Day Tuesday, personal experiences, ptsd, rapid-cycle bipolar disorder, three hopeful thoughts

Good morning, readers!

This week, I rustled up an article about some exciting developments in PTSD research.

Basically, scientists are looking at glutamate (one type of those fun little things in your brain that sends signals) and how alterations in glutamate levels affect PTSD. What this means for us is that PTSD is now being studied on a molecular level, which means that new treatments could be on the horizon!

My PTSD is generally well-controlled, as far as “controlling” it goes. I’m still mad-jumpy and don’t have a good time in crowds (the dissociation spikes, and sounds that hit my left ear first seem to make it worse, though my previous psychiatrist had no idea why). I still feel depersonalized/derealized every single day, though the level of detachment varies widely. I haven’t been able to pinpoint exactly what it is that makes it better or worse, but admittedly, I’ve been super lazy about charting it.

However, I’m sleeping soundly for the first time I can remember. I think a lot of us can relate to the hypervigilance and, by extension, light sleeping. Loud noises still startle me awake and my fiance sometime scares the bejeezus out of me by touching me–gently–to wake me up. But! and this is good news–the sounds of the cats wheezing or vomiting or fighting don’t wake me in a panic. It’s more of a “God, this again?” reaction, which, while not fun, is better than waking up with a racing pulse and momentary confusion about where I am.

As far as journaling about symptoms goes, I’m still trying to figure out a system. How many times in a day should I note what’s going on upstairs? I don’t want to become obsessive about it, as I did with my mood journal when I was first beginning treatment for bipolar disorder. At the same time, I want to make sure I have an accurate log of my symptoms and the events that may have caused an increase/decrease in the weird floaty feelings of unreality.

That being said, it’s sometimes hard to notice the changes because they’re subtle. Because this has been chronic for six years now, it often takes an absolutely massive spike before I notice anything is off. On a related note, I often don’t notice the symptoms decreasing because hey, it’s my “normal” now.

Any ideas or tips, readers? Should I follow the standard day/time/preceding events/level (on a scale of 1-10) format I’ve used in the past for mood tracking? What system(s) do you use?

I look forward to hearing from you! I’ll see you next week and as always, stay safe and remember to say one nice thing to yourself every day. Today I have two: “My new DIY manicure is bangin'” and “I am surviving my fiance’s work trip with zero negative emotions!”

It’s important to focus on the positive, especially when our emotional weather is often stormy.

28.

Authoress, ptsd, three hopeful thoughts

Today is my 28th birthday. I generally don’t put much stock in them–it’s just another day when you get past a certain age, in my opinion. But my fella made today really special (breakfast and a mini scavenger hunt to my gift!), so it’s the best birthday I can remember.

Birthdays are significant to me for one reason: they’re proof that I’m still alive. It might seem silly to most people, but as quite a few of you know, those of us afflicted with PTSD tend to also be plagued by the belief that we’re just not going to live very long.

For me, this feeling of dread started when I was in my mid-teens. I thought I wouldn’t make it to sixteen, then nineteen, then twenty-one…and here I am at twenty-eight, having endured three lifetimes worth of horror and survived it all. Every year on this date, I take a moment to marvel at that.

It’s kind of incredible. And you, my readers–all of you–are incredible for hanging on and being alive. Remember that when the bleakness starts to press close and you feel like you’re buried above ground. You are still here, and you should be so proud of that.

Until next time, readers, stay safe and lovely.

 

News Day Tuesday: Local Mental Health Resources

a cure for what ails you, abuse, anxiety, medication, News Day Tuesday, ptsd, therapy, three hopeful thoughts

Good afternoon, readers! This time, let’s talk local resources for mental health care.

I saw a wonderful counselor through the Johns Hopkins Student Assistance Program (which I’m eligible for because my significant other is currently a student). I’ll share more of the personal details in a post later this week, but the counselor I met with gave me some information about local resources I had no idea existed, and I’d like to pass those on to you. I feel they’ll be particularly useful to anyone in the Baltimore area, but I’m sure there are similar programs throughout the country.

First is Sheppard Pratt. Being new to the area, I was unfamiliar with this hospital, but they have a program specifically designed to help people dealing with all sorts of trauma.

The Trauma Disorders program at Sheppard Pratt specializes in dissociative disorders and CPTSD, which is exciting because I had no idea these types of programs existed anywhere. They certainly weren’t a thing in the Midwest, where I’m from. It’s an inpatient program, which isn’t a good fit for me for a number of reasons, but I plan to reach out to see if they know of any good outpatient therapists who are well-versed in these issues.

It’s comforting to know that there are facilities that offer support specifically tailored to complex post-traumatic stress disorder, which can present challenges to many therapists. I found one therapist during my time in Madison who seemed to know quite a bit about PTSD, including my dissociative symptoms, but she went on maternity leave shortly after I began seeing her. My subsequent searches for therapists was largely unsuccessful, which is not a negative reflection on any particular counselor–as I said, it can be a tricky affliction to effectively treat. I’ve been told that because of the depth of my dissociative symptoms, I’m not a great candidate for EMDR, which eliminates one of the most widely-used techniques for treating PTSD.

The second resource I learned about last Friday is the Baltimore County Crisis Response, which offers not only crisis intervention (as the name suggests), but also a 24-hour hotline and–this is the most exciting part–one-time psychologist and psychiatrist consults, which are particularly useful for people who are in a transitional period and looking for providers in the area but need refills of medication or therapy. That’s right, readers; there’s actually a place you can go for those all-important refills you can’t get anywhere else, which means no more rationing of medication to make it through.

The counselor at JHSAP was also kind enough to email me a long list of references for therapists in the area. Admittedly, I’ve been procrastinating a bit and haven’t gotten around to checking them out, but it’s on the list for this week.

Are you aware of resources and programs in your area, readers? Are they easy to locate, or do they require a bit of digging?


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News Day Tuesday: Childhood Mental Illness

News Day Tuesday, ptsd, rapid-cycle bipolar disorder, relationships, stigma

Good afternoon, readers! This week, I’m featuring an article from NPR related to the early detection of mental illness in children. Child psychologist Rahil Briggs states that half of all children show signs of mental illness before age 14.

On a personal note, I began experiencing symptoms of post-traumatic stress disorder around age seven or eight. My mother had gone to prison when I was six years old, and I went twice a month to visit her at the correctional facility that was several hours from my home. By this point, nightmares were a common occurrence–I’d had them regularly since age five–so my guardian and other relatives didn’t think much of it when the frequency increased slightly after these visits began. There was some talk of finding a therapist for me, but the idea was abandoned.

One of the earliest memories I have of PTSD-related symptoms was one night when I was attempting to play chess with my aunt in the basement of my grandmother’s home, where I lived for the majority of my childhood and adolescence. I began to feel odd, detached from my own body and my surroundings. I remember saying to my aunt, “Do you ever feel like you’re in a dream?” because that was the only way I could describe it at the time.

She had no idea what I was talking about and gave me a strange look, a reaction for which I can’t exactly blame her–if I weren’t “in the know” about the symptoms of PTSD, I would have found such a statement very strange.

As a child, I was generally calm and reserved, but I did occasionally “act out.” I would get panicky and anxious, a tiny ball of pent-up energy and what I can only describe as rage at nothing in particular. That energy had nowhere to go, so it was directed inward, causing lasting damage before finally exploding outward. I would storm around the house in a dark mood, only to erupt moments later in a fit of crying so intense I felt like I couldn’t breathe.

My family was helpless to help me because they didn’t understand–or perhaps didn’t want to accept–the reality of what was happening to me. Bipolar disorder, which has spread throughout the family tree like Spanish moss, was beginning to wreak havoc on my still-developing brain.

Childhood mental illness is a tricky subject. It’s hard to recognize, and it’s terrifying, both for the sufferer and the child’s loved ones. It can strike anyone at any time, regardless of socioeconomic class or education level or how strong the family’s ties are. Therefore, it’s especially important for parents to remember and impress upon their children that it is an illness like any other and is not a moral or character judgment. It is not evidence of parental failings or proof that the child has not been loved enough. It simply is, and the earlier it is detected, the earlier treatment and healing can begin.

Did you start showing signs of mental illness in childhood, readers? How did your family/caregivers react?


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