News Day Tuesday: BLOOM by Anna Schuleit

a cure for what ails you, bipolar disorder, major depression, memories, News Day Tuesday, ptsd, rapid-cycle bipolar disorder, stigma, three hopeful thoughts

Hey readers! This week, we’re doing something a little different for News Day Tuesday.

I stumbled across Anna Schuleit’s beautiful BLOOM project from 2003 (yes, I know I’m super late to the party). Today, I want to celebrate that project.

In 2003, artist Anna Schuleit installed 28,000 (28,000! Yow!) potted flowers throughout the psychiatric ward of the Massachusetts Mental Health Center (MMHC).

Anna Schuleit’s installation project was created within the entire building of MMHC, on all floors, inviting former patients and employees, staff, students, and the general public, to re-visit the historic site once more before its closing. There was also a symposium at a nearby venue, and an open forum on the front steps of MMHC, during which the patients were invited to tell their stories. The events were dedicated to the memory of the thousands of patients of MMHC, and included as many of them as we were able to contact, as well as the doctors, nurses, support staff, researchers, students, and the general public. The project was a non-profit effort run entirely by volunteers and all of the events were free and open to all.

Source

As people living with mental illness, some of us with more than one, we know the therapeutic power of telling our stories, of having a voice when we’re so often voiceless. Mindy Schwartz Brown wrote some beautiful poetry about her experiences at MMHC, which you can read here. One poem in particular, “Asylum,” touched me deeply.

ASYLUM
(for Anna)

How did this edifice become “home” to its inhabitants-
the renowned multiply degreed,
the haplessly homeless dually diagnosed,
the walking wounded,
the worried well,
the happy go lucky who cleaned floors,
cooked lunches,
took blood pressures.

How could it contain all of the
the egos,
the disintegrated, the inflated,
occupying one space in parallel play?
MD, SPMI
Ph.D, BPD
MSW, DBT
Tell me in this soup, where does one find one’s ME?

DSM IV, Anybody going for V?
What’s the code for those who close hospitals
then open prisons for the sick?

We all feel so much better now,
knowing our brains are
faulty and we are not.
Structural errors ,
neurotransmittor deficits,
viral origins,
genomic misconfigurations.

So now can we all be friends?
Can we do lunch?
Just as we would with a diabetic?

October 3, 2003

Mindy Schwartz-Brown © 2003

The pain of not being recognized is one we know all too well. The lines “We all feel so much better now, / knowing our brains are / faulty and we are not” struck a chord with me that resonated all the way through my body and down into what some people call the soul.

We are the ones who are forgotten. We are the ones who are hiding in plain sight, not out of our own desire to be invisible, but of the desire of others to make us invisible. We make others uncomfortable, particularly when we don’t outwardly fit the mold of the “mentally ill person.” Whenever I reveal that I have bipolar I and CPTSD to someone, I am typical met with one of two reactions. The person either recoils–the discomfort in their eyes is stark and harrowing–or they tell me how “brave” I am.

I am not brave. I simply live. What choice do I have? I do not want to die, though there are plenty of people who view living with a mental illness as a fate worse than death–and I find that more disturbing than anything going on in my attic. There have been countless times when the hauntings have gotten so noisy that I feel as though my mind may literally split in two. Still, I live. Our lives have worth. We have worth.

I’d like to end by including a few photos of Schuleit’s installation. I spent a great deal of time yesterday perusing the photos and reflecting–not on my own experiences, as I have never been inpatient, but on what others’ experiences might have been like as they lived out their day-to-day at MMHC.

bloom-by-anna-schuleit-red-mums-640x920

bloom-by-anna-schuleit-white-tulips

bloom-by-anna-schuleit-blue-hallway

All images above copyright Anna Schuleit.

Tell me your stories, readers. It’s important.

Those Old-World Blues

a cure for what ails you, anxiety, major depression, memories, personal experiences, ptsd, therapy

I won’t lie, readers; I’ve been down quite a bit lately. Most of it stems from deep-seated guilt that’s been playing the long con on me for most of my 28 years–it likes to pop its ugly head up and hit me so hard that sometimes it feels like I can’t breathe.

I’ve been carrying around a back-breaking load of guilt since I was a child. Some of it was inflicted by others, some of it by myself. There were so many little things–messages, perhaps–that sneaked in and grabbed me when I was at my most vulnerable.

When my mother went to prison, one of my maternal aunts abandoned her life in Chicago–what I perceived to be a vibrant life of friends and work and independent living–to return to her hometown to help my grandmother raise me. She never tried to make me feel guilty, but the damage had been done long before her arrival. I felt that there was something “wrong” inside me, that I didn’t deserve to be treated well, that I had done something to deserve the early childhood abuse and neglect that made me into a cautious, anxious, hypervigilant kid.

It all began to snowball from there. Anytime someone would do something nice for me–even something as simple as buying me an ice cream cone–I would immediately feel terribly sad for reasons that my child’s mind couldn’t comprehend. (Fun fact: To this day, the music from an ice cream truck makes me want to cry. Brains are weird.)

As many of you know, I’m studying clinical mental health counseling at Hopkins. I never expected to get in, but I was ecstatic! (I still am, though thankfully, the disbelief has faded a bit.)

My fiance has generously offered to support me financially through this time, as it’ll be probably another year until I can land a paying gig in my field. He’s told me time and time again that he doesn’t mind doing this because he’s financially secure enough to do so and because he loves me (and I suspect it also helps that I’m incredibly low-maintenance–see above paragraphs on guilt). I trust him and try to take him at his word.

But more and more frequently, the old guilt starts to creep in, which leads to devastating lows. Lately, I’ve found myself wanting to cry but not quite knowing why. I think it’s because I’ve suppressed so many emotions. I deal with everything by not dealing with it, which I recognize as alarmingly unhealthy behavior. Once I’m added to his insurance plan, my first order of business is to find a really good trauma therapist (that isn’t based out of one of the sites I’m looking at for practicum/internship).

Today, my fella told me that he thinks I have things “more together” than I think. And he’s probably right–I feel very good most days, although there are little nagging low points on even the best days. I can usually brush them aside using a couple of methods I’ve learned, which I’ll describe below.

Tonight is a rough night. He’s at dance practice, which is awesome–I’m glad we each have interests of our own, and it gives me time to practice the piano without being embarrassed about how rusty I’ve become. It also means I have time alone to cry everything out without worrying about making him worry.

Earlier, I went out on our balcony and looked up at the sky. It wasn’t quite dark but the moon was out in full force. It reminded me of my Great-Aunt Mare and how she’d come to the house twice a day when I was young–once in the morning for coffee with Grandma (her sister) and once in the evening to watch Wheel of Fortune with us. (Side note: I was awesome at Wheel of Fortune.)

I decided that a good cry would be the best medicine, since I’ve been feeling kind of weird all day, emotionally speaking. Shortly after her death, I made a small album on Facebook of the best photos of me and my great-aunt–Halloween at a pumpkin patch, hugging me close for a photo at my eighth birthday party, holding me when I was a baby. I looked at them and I let myself cry. I let myself howl my sadness into the void. And then I sat up and said, “That’s enough; let’s go write a blog post about it.”

I find that if I don’t come up with ways to distract myself, the sadness will become endless waves of grief and shame and all of the emotions I’ve been hiding away all these years. Once it’s out of the box, it’s so hard, so exhausting, to put it all back in.

I apologize for the downer post, readers. I haven’t had a personal post in quite a while but I feel as though being open and honest about my emotions, good or bad, can make others feel less alone. There have been so many times when I’ve been endlessly Googling about a specific worry or fear and bam, there’s a blog post about it. Though it may not help right away or offer solutions, it does make me feel less alone.

I hope you’re all staying safe and doing at least okay tonight. We all need to support each other, at our best moments as well as (and especially) our worst. We’re a community. We survived horrific things, and we continue to survive. Never forget that.


A Few Coping Techniques

  • I saw this one on Reddit last week and loved it. In a nutshell, the poster’s therapist advised them to think of someone they really dislike and imagine that all of the negative thoughts and worries are being spoken aloud by [whatever person]. The person this poster chose to use is Trump.
    • The way it works: Whenever worries or negative self-talk pop up, you go, “Shut up, Trump! [or whatever person you’ve chosen].” It actually does work, and it’s great for shutting down those thoughts at the drop of a hat. Of course, it’s always good to revisit those thoughts at a calmer, more appropriate time, but it’s nice to have a method to use when you’re in a situation where you can’t fully emote.

 

  • Another method I love (and promote to others quite frequently) is Ellis’ A-B-C-D-E method of challenging distressing thoughts. It comes from Rational Emotive Behavior Therapy (or REBT). Here’s the breakdown.
    • Step A: Identify the activating event–this is the event that triggers anxiety, depression, etc.
    • Step B: Look at the emotion you’re feeling and combine it with the activating event. Then, try to identify the beliefs that go along with that event and examine how they cause anxiety/etc.
      • For example, someone buying me something makes me feel guilty. This feeling of guilt and sadness comes from early childhood experiences. The end result is that I feel as though I don’t deserve kindness.
    • Step C: Look at the consequences of your irrational beliefs and realize that they can become a self-fulfilling prophecy. Because my response to kindness has been guilt and sadness for so long, I expect to feel that way every time someone is kind to me.
    • Step D: This is where you start to challenge those irrational beliefs and replace them with other, more positive ones. In my case, I need to work on building up my self-worth (long term) and thinking about the symbolism behind gifts and acts of kindness–“This person loves me and cares for me, and this act of kindness is coming from that place of love, not from a sense of obligation.”
    • Step E: This is basically the end goal and is usually called “cognitive restructuring.” At this point, you put all of the steps together and take special care to notice how the process has affected you and whether or not it has helped you to combat all the pieces that bring on the negative emotions (in Steps A and B).
      • You’re essentially re-conditioning your brain to replace negative associations with positive ones. It’s definitely a long road, but I’ve found it to be extremely helpful. However, it’s less useful to me when I’m in a crisis moment.
  • The last one is very calming to me, because a lifetime of CPTSD has led me to an incessant and sometimes self-destructive need for control. I worry endlessly about bad things happening to loved ones (because abandonment issues are fun!), so this little mantra really helps me chill out and remember that I can’t control every variable in my life.
    • Essentially, the saying goes, “If you can change something, do not worry, because you will find a way to change it. If you cannot change something, also do not worry, because there’s nothing you can do about the situation.”
      • This takes some getting used to if you’re like me and overanalyze and catastrophize everything, but once you’re there, it can be a very powerful tool for derailing anxiety before it hits its boiling point.

Adult Separation Anxiety.

major depression, memories, ptsd

P. left on Thursday evening for his three-week vacation to Australia and New Zealand (yay!). I’m excited that he gets to go on this adventure, and am eagerly awaiting his return.

However, for someone like me, prolonged absences can have some very real, very serious side effects. I’ve dealt with separation anxiety all my life; it started when I was a young child, maybe three or four years old, and would wake up alone in a fully-lit house around midnight to find the home empty–my mother would leave me by myself to go out drinking at a bar a few blocks away.

One of my earliest memories is of trying to find the bar in the phone book, only to realize I had no idea how to reach or dial the phone. Instead, I left the house and walked about halfway down our block in my pajamas, the street completely dark except for the streetlights. I felt the loneliest I ever have in my life as I stood at the top of the hill, looking down at all the darkened houses and feeling the wind at the back of my thin flannel nightgown.

There were more instances, of course. And  I, now 27, realize that my significant other is not going to just abandon me. But those deep-seated emotions and reactions from when I was a small, vulnerable child have lingered, and I’m struggling to bring them down to a more appropriate, more manageable size.

I spent the last two days home sick with the migraine from hell, then worked my half day this morning. I visited a friend for about an hour after that, then came home and got more sleep. I reminded myself to eat when I woke up around 6:00 PM, because I had put zero food in my body since Thursday afternoon, when I had lunch with P.

Right now, I’m feeling calmer (thanks to excessive sleep and the wonders of lorazepam) and am trying to devise small tasks for myself to make the long, lonesome gaps between work more bearable for the next nineteen days. I have only a few more boxes left to move into P’s apartment, though that means I’m without a piano for the remainder of his trip, which is less than ideal because that’s usually a major outlet for me.

I can also work on looking for counseling programs in Baltimore, where (spoiler alert!) we’ll be moving in a few months as P. starts a nine-month-long program at Johns Hopkins. I’ll still be starting some online courses in May, but will need to find a traditional school that will take my credits. It’s a big change, but given everything that’s going on in Maryland (and how rough the state of MHC is), I feel like I could potentially do a lot of good things there.

That’s where I am right now, readers. If you’ve ever been through separation anxiety, please reach out to me, especially if you have some tips. Let’s help each other through this–I’d love to hear your thoughts.

Pain.

a cure for what ails you, abuse, memories, ptsd, relationships

My last pain doctor suggested that my history of abuse (especially sexual abuse) might be the main source of my pelvic pain, along with neuropathy. I have muscular trigger points that cause low pelvic pain, despite having had two injections and a nerve block. It’s true that my endometriosis has progressed from stage one to stage two, after essentially being “reset” by a laparoscopy in March 2011, but I’m taking two forms of birth control to at least slow the progress, if not completely stop it.

I have no more options for controlling or reversing the endometriosis. Lupron didn’t work—all it did was leave me with horrible acne scars on my left cheek and $2,000 poorer. Another surgery is out of the question, mostly because of finances but also because there’s a very good chance it could cause more scarring and adhesions and actually make things worse. All this has led me to reconsider my stance on the mind-body connection, which I’d previously scoffed at.

I was looking up information on pelvic pain related to a history of abuse and found a study on the topic from 2000 (http://www.ncbi.nlm.nih.gov/pubmed/11084180). Some highlights:

  • 22% of patients with chronic pelvic pain were sexually abused before their 15th birthdays
  • 25% of women with chronic pelvic pain were exposed to emotional neglect, especially during childhood
  • 38% were exposed to physical violence

I haven’t written as much about sexual abuse as the other forms I’ve suffered, and I think that’s probably because I still haven’t connected with any of it emotionally. Now that I’m in a functional relationship with a good person who makes me feel safe, appreciated, and generally cared-for, I’m beginning to feel better about myself and more secure and confident in my self-worth.

In short, I think I’m finally ready to talk about it, though in the interest of protecting their privacy, I’m going to avoid all but the vaguest references to abuse within my family.

I’m still not completely sure whether or not I was molested as a child, although more therapists and psychiatrists than you can shake a stick at have all told me that my partial memories, repression, sexual precocity, and general attitudes toward my body and sex are strongly suggestive (no pun intended) of early abuse. I was terrified of men until I was fifteen—I stopped crying and completely losing it around them around age seven or so, but I kept my eyes down, or at least averted, and would cross my arms over my chest and hunch over—anything to keep them from seeing me or even noticing that I was there.

My mother had a boyfriend who made me profoundly uncomfortable from the time I was five until she went to prison a year later.

I remember crying whenever she left me alone with him. They both drank, but I was especially frightened of him. He was tall and overtly masculine in a swarthy sort of way with dark eyes and hairy arms. I will never forget those arms, which I think explains my penchant for mostly hairless men with less testosterone-loaded features.

I have a memory from when I was about five-and-a-half of lying in bed in the room he’d set up for me in his house. (We frequently stayed overnight, and I’d always cry when she insisted I had to go with her.) They’d gone out on a date and had left me alone with his son, who was fifteen at the time and very kind and protective of me. He used to read me books before bed, but because he was pretty severely dyslexic and I was way ahead of the curve in terms of language and reading ability, I usually took over and read him to sleep on the living room floor before putting a blanket over him and tucking myself into bed.

For some reason, I was still awake that night when they came home, albeit in a drowsy twilight state. I remember them opening the door to check on me and seeing the dim, watery yellow light flooding in through the crack in the door. She walked away and he lingered there for a moment. I remember seeing him hesitate, then approach my bed. I remember his dark silhouette against the thin light from the hallway. I remember that hairy arm stretched over my chest, and then everything fades to black. The memory ends there.

It bothers me, not because of the implications but because I pride myself on being annoyingly self-aware and don’t like the idea that my brain, which I know so well, is still hiding things from me. I want to know. I don’t want to know. I’m curious, but I know there’s probably a good reason my brain is blocking that memory. What good would it do, anyway, knowing for sure whether or not anything had happened? I know that he was abusive toward both of us in other ways, and I feel like that should be enough.

But sometimes it’s not.

I’ve written about the other abusers—all four of them, for a grand total of five—in other posts and may revisit the topic later. But for now, I wanted to finally speak out about the one incident from when I was a child that’s still bothering me, that I still haven’t been able to untangle, in hopes that it might strike a chord in one of my readers. I don’t like to think about other people being abused, but I know it’s one of those horrible realities I have no choice but to face, especially since I want to specialize in trauma therapy.

It feels wrong to hope that someone will be able to relate, that they will reach out and that maybe we can have a dialogue and reach some sort of insight together (or at least achieve catharsis), but I feel like it would be incredibly helpful right now. I’ve learned that we need to lean on each other, because no matter how good the intentions of our friends, partners, and families might be, there is no substitute for being able to talk to someone who’s experienced what you’ve been through.

I am here for you, readers. If you need help, I will help as best I can. And if you need to howl into the void, I will be your void.

Anniversary.

abuse, memories

Today is a happy day.

Seven years ago today, at about 9:00 PM, I told my abusive ex that I was leaving him, that I didn’t want to do it anymore, that I didn’t want to live in violent cycles of rejection and acceptance. I told him, for the first time, that his behavior was abusive.

It was terrifying. I had just completed my first year of college and was living at home with my auntmom and grandmother. There had been a huge thunderstorm and the power was out, and I was sitting in my bedroom, back against my bed, staring into the flame of a candle.

I started to feel restless. My aunt-mom was reading in bed, so I wandered into her room and sat down. “I don’t think I want to be with — anymore,” I said slowly, unable to meet her gaze. She nodded and patted my hand. I left and made the phone call.

He threatened suicide several times but some weird strength had possessed me and I called his bluff. The next few weeks were miserable—he blew up my phone, told me he had started smoking and drinking because I’d hurt him so badly, and made comments that made our mutual friends uneasy.

But it passed. It always passes. And today, I am celebrating my freedom and thanking the universe for that out-of-the-blue ferocity I needed to finally make a clean break after two years of hell.

Mental Illness in Entertainment: Six Feet Under

a cure for what ails you, memories, rapid-cycle bipolar disorder, relationships, self-harm, stigma, suicidal ideation, three hopeful thoughts

I recently binge-watched “Six Feet Under” for the first time (Michael C. Hall and Frances Conroy being the main draw, though my backup plan for life since I was 15 has been mortuary school) and was overall impressed with the show’s treatment of Billy, who has severe bipolar disorder with psychosis. However, though Jeremy Sisto’s* performance was excellent, I had a hard time fully enjoying it because of the painful memories it dredged up—not because of his behavior, but because of other characters’ reactions to it.

As I’ve mentioned several times on this blog, I wasn’t properly diagnosed until I was 24 years old, a full sixteen years after the initial onset of my symptoms. (The disorder is notoriously difficult to diagnose in children and teens because teens are stereotypically “moody” and, in my case, mixed episodes in children can look a lot like run-of-the-mill temper tantrums.)

The result is that in both of my long-term relationships, I’ve been accused of being manipulative and even emotionally abusive simply for expressing my needs. Most of you can probably relate to how difficult it is to reach out for help when you’re struggling, and I’m not sure how telling a loved one that I was worried about hurting myself and didn’t trust myself to be alone counts as either. Each time, I felt guilty beyond belief for making the person in question cancel plans to sit at home with me when I couldn’t stop crying and generally was not much fun to be around. But at the same time, I doubt many people would begrudge, say, a cancer patient for needing company on a bad day.

It’s true that at times, my behavior was what most people would refer to as “a little off,” and I am horrendously embarrassed by it. I try not to look back at the things I said and did back then because I know that my illness was the culprit and that I was not at all myself.

I take comfort in knowing that I’m stable now and haven’t had a major episode in over a year. I am in a relationship again, and though it’s in the fledgling stages, it’s actually functional and healthy and I can handle prolonged absences (my fella travels for work quite a bit) without panicking and worrying and feeling intolerably lonely. For the first time in my life, I’m experiencing true emotional independence. I’m able to take care of my own needs and create my own happiness. For the first time in my life, I am not hinging my happiness and emotional well-being on a man. I actually have object permanence and can trust that he’s going to return and not suddenly decide he no longer cares about me. I have accepted that if that ever does happen, it’s not my fault. And while I appreciate his presence and that he augments my life and has affected it in a very positive way, he is not my entire world.

This is a huge step. I’m pretty much the last person I ever expected to see in a healthy relationship, but amazingly, I’m managing to pull it off. The entire experience thus far has been incredibly healing, and with each good experience, each good day, I am learning to forgive myself for the past.

Since it's official now, here's a super-cute picture of us. :3

Since it’s official now, here’s a super-cute picture of us. :3

* On a lighter note, does anyone else think he totally looks like Kevin Rowland? (Check out the video for “Come On Eileen” by Dexy’s Midnight Runners, then tell me I’m wrong.)

My very first column – “Depression: Cancer of the Mind,” published October 15, 2008.

major depression, memories, stigma, therapy, three hopeful thoughts, Throwback Thursday

This marks the beginning of a new mini-feature on the blog: Throwback Thursdays. See below for more!

When I was nineteen (and probably manic), I submitted a column proposal to my hometown’s newspaper. Shockingly, they decided to pick it up. It wasn’t a huge reader base—my hometown’s population is somewhre in the 60,000 range—but I was surprised and elated to have the opportunity to share my experiences and put a face to mental illness, which was a big deal in a small city in Iowa.

I had to abandon the project seven months later, when taking a full course load and working two part-time jobs plus an internship became too much; however, I was approached the following summer by two women in my hometown to write a series of articles regarding the transition from high school or college to the “real world.” The series caught the attention of Mental Health America (the Iowa branch) and I was honored with an award and some cash (which, as a poor twenty-year-old college student, was greatly appreciated). 

I’ve kept all of the articles and letters in a box for years. I still pull them out sometimes when I start to feel like a hack or minimize the impact of the things I’ve done. Ultimately, it’s not about recognition or awards (although I must admit that my writerly ego really enjoys being stroked from time to time). It’s about having tangible proof that I was here, that I was able to accomplish something despite having been dealt what most would agree is a fairly difficult hand in life. 

As an existential nihilist, it’s difficult for me to see any inherent meaning in the universe, which I view as absurd and often confusing. But it’s actually a very hopeful philosophy/worldview to have, because it means that each of us has the opportunity to create meaning for ourselves and share it with others. I am slowly beginning to learn that “hope” is a four-letter word, but it’s not necessarily a bad one.

Over the next few weeks, I’d like to share my articles, some memorable stories about my time as a columnist, and perhaps a few of the more poignant letters and emails I received in response to my columns. I’m somewhat mortified by how young my voice is, but I’m reminding myself that it’s an interesting and valuable snapshot of who I was at 19: a girl who wasn’t afraid to put herself out there, who believed she could make a difference in her own small way and was maybe a bit idealistic.

In some ways, I think I am still that girl.

“Depression, cancer of the mind” was originally published on October 15, 2008. My editor had titled the first article, which I’m assuming was because I was too disorganized/cycling too hard to do it myself. I can’t remember who came up with the titles after that; it was probably a mixture. The column appeared every other Wednesday.

Note 1: The features editor decided to give my series a title—Depression: Cancer of the Mind—and a little banner at the bottom, which I thought was the coolest thing ever.

Note 2: At this point in time, I was still diagnosed with and being treated for mild-to-moderate PTSD and general depression. It wasn’t until September 2012 that I was re-evaluated and diagnosed with major depressive disorder, and it was an even longer wait (July 2013) until my correct diagnosis—rapid-cycling bipolar disorder, type I, and C-PTSD with dissociative features—was confirmed and I was able to begin treatment.

Depression, cancer of the mind   Published October 15, 2008

Sometimes people ask me, “How did you do it? How did you make it through 11 years of severe depression without ever once asking for help?”

I guess I can understand their disbelief: I have been through the mental equivalent of hell and come out the other side. I have climbed over Satan’s frozen back, much like Dante traveling through Hell in The Inferno. The only difference is that in this case, “Satan” is the despair trapped inside my mind, causing it to decay slowly from the inside out.

Some say that schizophrenia is the cancer of mental illness, but to an extent, I disagree. It’s true that schizophrenia does kill the mind and allow the sufferer to descend into madness. But just as there are many types of cancer, there are infinite varieties of mental illness that could be considered cancerous.

Depression is one of them.

When you are depressed, most people assume that you will “snap out of it,” even though the stereotypical person living with depression does not leave his or her bed for days, sometimes weeks, at a time. It is every bit as destructive as cancer or diabetes, though even now few people realize it.

I suppose this is because people traditionally fear the unknown, and mental illness, aside from death, is one of the biggest unknowns of all. It can strike anyone at any time. Even those of us living with depression who have found ways to cope and make it through the ending and exhausting days look just like everyone else. Unless you are having a particularly bad bout of depression and feel the urge to run from the room crying (which society views as unacceptable), depression usually goes unnoticed.

It is my hope that by sharing my struggles against the silent suffering associated with depression, others will know that they will be OK, that mental illness is nothing to be ashamed of, and will share this knowledge with others. The more that people know about mental illness, the better; educating the public is the first and most effective step in fighting to tear down the stereotypes.

Something that I would like anyone who has lost hope to know is that you are not crazy, only extremely sensitive to the world around you. You are very brave, but you do not need to suffer alone. There is always help available, and accepting it is not admitting defeat.

The persistence of memory.

abuse, memories, ptsd

The atmosphere at my job is refreshingly relaxed—they don’t care what we wear as long as we’re presentable, I have ample downtime (for writing and working on my latest Stupid Human Trick, which is teaching myself Russian), and we listen to the radio all day.

A few days ago, “Tequila” by The Champs came on and I was hit by a massive wave of nostalgia. I’ve heard the song dozens, if not hundreds, of times since this memory was formed, but what sprang to mind with the opening notes was vivid and visceral. It’s one of the few memories I have of the period between ages four and seven that’s genuinely pleasant, untainted by the constant conflict that lived with us in my grandmother’s house. Given how many of its contemporaries have been emerging lately, I’m glad it decided to come back when it did.

I first heard the song when I was five years old. My mother and I were driving from my hometown of Dubuque, Iowa to Oshkosh, Wisconsin with her rich boyfriend (who possibly sexually abused me as a child and certainly dealt out some heavy-handed emotional and physical abuse, pun most definitely intended) to visit the Public Museum—specifically, to see the Apostle Clock.

We had taken his red Corvette—he had a thing for classic cars, along with drinking too much and throwing his girlfriends down flights of stairs—and stopped at a gas station. “Tequila” was playing softly in the background as we rolled up to the pump. I was sleepy and tilted my head back against the silky cream-colored leather of the seat to stare up at the sky. It was dark; few stars were out, and I remember feeling carefree as I let the muggy night air, cut with a cool breeze, fill my smoke-worn lungs.

We stayed in an apartment in the city. I’m not sure whose it was, but I remember marveling at the deep-pile white carpet; at home, we had slightly worn oak floors, polished and neglected enough times in the house’s thirty-odd-year history to have accumulated a thin, uneven coat of dark residue. The next day, we arrived at the museum. It must have been June or July, because we visited shortly after a fire destroyed most of the third floor. I was charmed by the clock, of course, but what really drew my attention was the small collection of charred, water-damaged items that had been rescued from the fire.

“Come on, you don’t want to look at that,” said my mother’s boyfriend, placing a large and hairy hand on my shoulder in an attempt to draw me away. But I was transfixed by the blackened head of a baby doll, one eye burned away, one eye still open in an eerie nod to the horror movies my mother and I loved to watch. This penchant for the macabre has only intensified as I’ve gotten older, and I enjoy puzzling over what these things mean in relation to who I am today and whether everything really is connected. As a nihilist, I’m inclined to believe that nothing has any inherent meaning, which adds another dimension—if all significance is unique to each person, it should make relating to one another more difficult. I’ve found that to be true more often than not, but I’m not surprised, given my…unusual set of memories and experiences.

It’s strange, isn’t it? Certain memories—in my experience, the ones that seem the least-significant at the time—become indelible, while other, larger ones—being present the night my mother was arrested and having only fringe sensory memories of it is a good example—fade into the background. They slip away so easily that at times, it seems that they were never there at all. Was it a memory or a dream? And in the end, does it make much of a difference?

Nietzsche famously said that ‘The existence of forgetting has never been proved: we only know that some things do not come to our mind when we want them to.”

Readers, what has your experience with memory been like? What’s your earliest memory? Are they sensory and blurred around the edges, or is every aspect perfectly crisp? Have you ever thought about what your memories say about you? 

As always, I’m eager to hear from you!